An array of technology-based interventions has increasingly become available to support family caregivers, primarily focusing on health and well-being, social isolation, financial, and psychological support. More recently the emergence of new technologies such as mobile and cloud, robotics, connected sensors, virtual/augmented/mixed reality, voice, and the evermore ubiquitous tools supported by advanced data analytics, coupled with the integration of multiple technologies through platform solutions, have opened a new era of technology-enabled interventions that can empower and support family caregivers. This paper proposes a conceptual framework for identifying and addressing the challenges that may need to be overcome to effectively apply technology-enabled solutions for family caregivers. The paper identifies a number of challenges that either moderate or mediate the full use of technologies for the benefit of caregivers. The challenges include issues related to equity, inclusion, and access; ethical concerns related to privacy and security; political and regulatory factors affecting interoperability and lack of standards; inclusive/human-centric design and issues; and inherent economic and distribution channel difficulties. The paper concludes with a summary of research questions and issues that form a framework for global research priorities.
This article is about boundary work and the accomplishment of work among various groups claiming professional status at the bedside in the hospital. The author analyzes qualitative data from 110 in-depth interviews and participant observation with physicians, nurses, respiratory therapists, social workers, and occupational, physical, and speech therapists. The findings show how work roles, and hence occupational boundaries, are flexible and malleable. Practitioners usually cross these boundaries within reason, and thus boundary work engenders ironic dualities; it generates both conflict and cooperation, questioning and affirmation, and that is why most reasonable work role transgressions do not fundamentally undermine the social order of the hospital. Boundary work provides insights on the dynamic nature of professionalism as the outcome of a negotiated order that reveals itself at the ideological and behavioral levels. Understanding how and why boundary work is done also has policy implications at the workplace and health care service levels.
This article examines the formation of occupational identity in a nursing program. The normative and ideological dimensions of this process are revealed in the program's goals and the views of educators and students through qualitative data from observations and 30 in-depth interviews. Educators seek to socialize students toward professionalism to raise the occupation's status by emphasizing the scientific and technical basis of nursing. Yet students uphold a gendered discourse by identifying a normative dimension of caring as central to their occupational identity. The dilemma between professionalism and caring is reconciled as students construct an occupational identity based on "educated caring," where these two dimensions are equally valuable and significant.
This article presents a comprehensive conceptual framework designed to foster research in the changing needs of caregivers and persons with dementia as they move through their illness trajectory. It builds on prior theoretical models and intervention literature in the field, while at the same time addressing notable gaps including inadequate attention to cultural issues; lack of longitudinal research; focus on primary caregivers, almost to the exclusion of the person with dementia and other family members; limited outcome measures; and lack of attention to how the culture of health care systems affects caregivers’ quality of life. The framework emphasizes the intersectionality of caregiving, sociocultural factors, health care systems’ factors, and dementia care needs as they change across time. It provides a template to encourage longitudinal research on reciprocal relationships between caregiver and care recipient because significant changes in the physical and/or mental health status of one member of the dyad will probably affect the physical and/or mental health of the partner. This article offers illustrative research projects employing this framework and concludes with a call to action and invitation to researchers to test components, share feedback, and participate in continued refinement to more quickly advance evidence-based knowledge and practice in the trajectory of dementia caregiving.
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