This study aimed to describe the experience of families who have children with spina bifida in the daily care. We conducted a study of qualitative approach, employing to collect data on semistructured interviews with 09 families. Data analysis was developed with support in the method of thematic analysis. The results showed, understand the impact of malformation of the child on the family and the difficulties to provide the daily care for the child. The study also highlights the need of health professionals and nursing think new models of care that are focused on the needs of the family, not only in the pathological process of the child.El cuidado del niño con espina bifida por la família en el domicílio.