Patients with multiple sclerosis tend to report higher levels of work difficulties and negative outcomes, such as voluntary and involuntary work termination and reduced work participation. In this article, we discuss the complex interactions of disease, personal coping strategies, and social and structural factors that contribute to their work experiences and outcomes. An overview of the coping strategies and actions that leverage personal and context-level factors and dynamics is also provided to support the overall goal of continued work in patients with MS.
Purpose: A stroke is a sudden event which may leave individuals and their families ill-prepared to deal with the resultant disability. Several contextual factors can influence the recovery process. These factors, internal and external, exist interactively in the lived experiences of the survivors. The limited availability of rehabilitation centres that are located in urban centres meant that recovery predominately occurred outside of the biomedical health and instead relied upon the resources available to individuals and their families. Methods: A qualitative approach with data from in-depth interviews and observations were used to identify contextual factors that shaped recovery following stroke in a community. Twenty-seven individuals with stroke were drawn from a health and demographic surveillance system in Malaysia. Results: Hope and optimism, coping strategies, motivation and support from family and friends, and the use of alternative and complementary medicine shaped the process of recovery within a context where infrastructure is extremely limited. Conclusion: The identification of factors that facilitate the recovery process provides a background in which health care providers can utilise to improve their understanding of the stroke experience. Such understanding could be instrumental in aiding health professionals to offer the most effective help to their clients. ä IMPLICATIONS FOR REHABILITATIONIdentification of contextual factors provides a background for the understanding of the stroke experience. Incorporation of religion into rehabilitation could support and maintain hope in recovery for the survivors and aid acceptance. A collaboration of healthcare professionals with traditional medicine therapists may prove beneficial for the rehabilitation of stroke survivors in Malaysia. ARTICLE HISTORY
In LMIC, recovery can be shaped by the family unit and through active coping strategies especially those in relation to spirituality. Implications for rehabilitation The impact of stroke on survivors and lack of specialized stroke care compromise the recovery process and quality of life for stroke survivors in low and middle-income countries. Support from the family and reinforcement of religious coping were judged to successfully aid recovery. Physical and emotional impairments as well as psychosocial wellbeing of survivors in the context of environmental factors need to be addressed.
Stroke recovery involves adapting to new limitations and discovering the support necessary to live life. These changes are influenced by a range of environmental factors. Healthcare professionals need to support stroke patients in identifying challenges and work to find innovative ways to address them. Stroke survivors may benefit from the use of an assistive device beyond its clinical function to participate purposefully in activities of daily living. Implications for Rehabilitation Stroke is a cause of disability that limits everyday activities and reduces social participation. Assistive devices help achieve independence, social inclusion and shape stroke recovery. Individuals with disabilities in low and middle income countries often do not have access to assistive devices and resort to innovative solutions that are purpose built. Stroke recovery involves adapting to new limitations and discovering the support necessary to live life as best as possible.
Clinical rehabilitation improves long-term functional outcomes and lessens hospitalisation following a stroke. However, there is a need to identify alternative mechanisms that could lead to improved function beyond clinical recovery. There exists a paucity of information highlighting the role of religion amongst Muslim stroke survivors during the stroke recovery process. This study addresses the lacuna by examining the role of Islam in stroke recovery for people living in rural Malaysia using an ethnographic approach. Healthcare providers need to recognise the value of religion when attending to the care of patients by offering a holistic approach that would include supporting coping strategies and adaptation based on religious beliefs.
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