A panel of writers nominated by the 14 sponsoring organizations of the Joint Committee was commissioned to prepare first draft standards for topics that had been identified earlier by the Joint Committee. Each writer was given three topics, a writing guide, worksheets, and a model standard to use in developing their drafts. The drafts included the following: an explanation of the standard, including definitions of key terms; a rationale discussing why the standard was important; guidelines to help people adhere to the standard in practice; common errors associated with implementation of the standard; an illustrative case, showing how the standard was not applied, but could have been, including an analysis of the case with suggestions; and references, legal citations, and other citations that would help people apply and meet the standard.Over 100 drafts were prepared for the 30 topics for standards and these were supplemented by drafts prepared by Joint Committee members in preparation for the October 10-12 meeting. At the Joint Committee meeting, small task groups reviewed alternative drafts for each standard and prepared one version that was based on the drafts and task group discussions. The work of the panel of writers was instrumental in developing a basis for the task group work. Members of the panel of writers included:
BackgroundThe Psychology team have run two creative workshops for young people with health conditions based on the ‘Tree of Life’, a metaphor informed by narrative therapy. Young people are invited to create their own tree, with different parts of their tree representing different areas of their lives, such as skills, hopes and dreams. The day involves activities and talking in the group which aim to support young people to grow in confidence regarding living with their conditions and challenges that they face. The day also aims to support young people with making connexions and sharing experiences and knowledge with each other.ProjectSeven young people attended the first day, aged between 9–16 years with health conditions managed by a number of different GOSH teams including endocrinology, oncology and rheumatology. The presentation will outline the content of the day, describe the role of the facilitators and the approach taken. This will be demonstrated through video and camera footage of the young people engaging in the group activities.ResultsFeedback from the young people and their parents was very positive and indicated that the group enabled young people to:• Feel more connected to other young people facing similar challenges in their life.• Build confidence.• Hear other people’s ideas about how to cope with challenging times.• Be creative in expressing their thoughts and ideas.This presentation will outline our learning from running these first two days and our hopes for future days, including how to involve young people in the development and running of future Tree of Life days.
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