Resumen. Objetivo: examinar aspectos transculturales de la revelación del diagnóstico de cáncer en pacientes brasileños y españoles. Método: Se realizó una investigación cualitativa en la que fueron entrevistados 28 pacientes en quimioterapia (14 brasileños y 14 españoles). El análisis de contenido identificó tres ejes temáticos: 1) Cómo fue revelado el diagnóstico; 2) Contexto en que el diagnóstico fue revelado y 3) Quién reveló el diagnóstico. Resultados: existen particularidades en la manera de revelar el diagnostico entre los dos países. En Brasil aún ocurre que el enfermo puede ser derivado a un oncólogo sin una explicación satisfactoria previa sobre su estado de salud. Aunque en los dos países existan relatos de comunicación de diagnóstico en el contexto apropiado (consulta), también ha aparecido revelación de manera informal (por teléfono) sin un ambiente adecuado para que el paciente sea acogido y tenga posibilidad de expresar sus miedos y sus dudas. Conclusión: es necesario invertir en la formación profesional para mejorar la habilidad de comunicación y educación en salud para tratar pacientes con cáncer. Palabras clave: cáncer; comunicación; relación médico-paciente. [en] Cancer disclosure: a cross-cultural research Brazil-Spain Abstract. Objective: The aim of this study was to examine cross-cultural aspects of the disclosure of cancer diagnosis in Brazilian and Spanish patients. Method: A qualitative research was carried out in which 28 chemotherapy patients (14 Brazilian and 14 Spanish) were interviewed. Content analysis identified three thematic categories: 1) How the diagnosis was disclosured; 2) Context in which the diagnosis was disclosured; 3) Who disclosured the diagnosis. Results: Particularities in the diagnosis disclosure between the two countries was found. In Brazil, it still happens that patient can be referred to an oncologist without a satisfactory explanation about his health status. Although there are reports of diagnosis disclosure in the appropriate context (consultation), also there are reports informal disclosure
Sistema de avaliação: às cegas por pares (double blind review).
Surviving childhood cancer is a difficult experience for children and their caregivers, it can produce long-term emotional distress. Illness perceptions refer to the way people understand the different aspects related to illness from their individual and collective experiences. Objective: to compare the illness perceptions of adolescent childhood cancer survivors and their caregivers and examine the relationship between illness perception of childhood cancer survivors, their caregivers, and sociodemographic, illness, and treatment variables. Forty-three survivor-caregiver dyads (the mean age of a survivor 17.05 years old; the mean age of caregivers 47.53 years old) participated in the study and answered the Brief Illness Perception Questionnaire (Brief IPQ) and Demographics data. Results: Results showed significant differences in the illness perceptions of survivors and caregivers. Caregivers presented more negative cognitive perceptions than survivors (t = −6.701, p < 0.001), especially in the identity dimension (t = −4.327, p < 0.001), and more negative emotional perceptions than survivors (t = −4.132, p < 0.001), both in concern (t = −3.695, p < 0.001) and emotional representation (t = −3.466, p < 0.001). No significant correlations were found between survivors' and caregivers' illness perceptions and sociodemographic illness variables. Conclusion: These findings showed that even though dyads went through cancer together, survivors’ and caregivers' perceptions of childhood cancer are different, indicating the need to better understand how children growing up with a chronic disease develop such illness perceptions and their experience.
The main purpose of the study was to assess the relationship between PTG, challenge to core beliefs, intrusive and deliberate rumination in a sample of 43 dyads of childhood cancer survivors and their caregivers. Methods: Survivors (mean age = 17.04; SD=3.67) and caregivers (mean age = 46.84; SD = 8.32) completed the Posttraumatic Growth Inventory (PTGI), the Core Beliefs Inventory (CBI) and the Event-related Rumination Inventory (ERRI). Results: Results showed a positive and high correlation among PTG, CBI, and ERRI in both groups, separately. CBI was the main predictor of PTG both among survivors (β=0.826; t=9.393; R²=0.683; p≤0.001) and caregivers (β=0.552; t=4.235; R²=0.304; p≤0.001). Caregivers reported higher scores than survivors in PTG (t=-2.999 p≤0.01) and its dimensions Relationship with others (t=2.498; p≤0.05), Spiritual change (t=-15.823; p≤0.001), Life appreciation (t=-3.129; <p≤0.01), as well as the means for intrusive (t=-3.862; p≤0.001) and deliberate rumination (t=-3.113; p≤0.01). Discussion: Caregivers are more involved in cognitive processes and reported higher PTG than survivors. This can be probably related to the concomitance between the period of disease and the cognitive development process of the survivors.
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.
customersupport@researchsolutions.com
10624 S. Eastern Ave., Ste. A-614
Henderson, NV 89052, USA
This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.
Copyright © 2024 scite LLC. All rights reserved.
Made with 💙 for researchers
Part of the Research Solutions Family.