BACKGROUND: Cancer survivors may continue to experience psychosocial and physical needs related to their cancer experience for many years after treatment. The specification of these needs across cancer types and by survivor characteristics may lead to better prevention approaches and clinical responses. Mixed methods were used to examine responses to an open-ended question about current unmet needs from a survey of 2-, 5-, and 10-year cancer survivors. METHODS: Qualitative techniques were used to code themes of unmet needs from open-ended responses. These themes were then examined with quantitative techniques to describe the frequency of unmet needs across disease subgroups and demographic subgroups of survivors. RESULTS: There were 1514 responses to the open-ended question on unmet needs. Respondents ranged in age from 24 to 97 years and included proportionately more women, and 18% were minorities (black and Hispanic). Sixteen themes of unmet needs were identified. The number and type of unmet needs were not associated with the time since cancer treatment. Breast cancer survivors identified more unmet needs than other survivors. Male survivors and especially prostate cancer survivors identified personal control problems as current needs. Older cancer survivors identified fewer unmet needs on average than younger survivors. CONCLUSIONS: This analysis of an open-ended question on unmet needs extends our understanding of how cancer survivors perceive problems related to cancer. How cancer-related needs change over time and differ by sex, race, and ethnicity and how problems with personal control become manifest are areas of inquiry requiring further research. Cancer 2015;121:623-30.
The purpose of this study was to examine older adults' experiences and perspectives regarding transportation mobility. Using a community-based participatory research approach, residents of Arlington, Texas, age 55 and older, participated in individual interviews (N = 15) or one of six focus groups (N = 45) as part of an overall study about ageing well in a large ethnically diverse city in the United States of America. Thematic analysis was conducted using inductive and deductive qualitative methods and social equity as a sensitising concept. Findings indicate that older adults who are transportation-disadvantaged experience limited access to health care, goods and services and are isolated from familiar lifestyle habits and social networks. Access to affordable, adequate transportation is compromised through social and political forces, which marginalise historically disadvantaged populations. Implications for cross-disciplinary practice and future research on sustainable transportation and policy development are discussed within a social justice and social equity framework.
Findings provide support for the importance of a relational community and culture change within NHs for positive EOL experiences, in addition to providing a model to guide future research priorities.
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