This paper presents a user-centered design (UCD) process of an interface for Parkinson's disease (PD) patients for helping them to better manage their symptoms. The interface is designed to visualize symptom and medication information, collected by an Internet of Things (IoT)-based system, which will consist of a smartphone, electronic dosing device, wrist sensor and a bed sensor. In our work, the focus is on measuring data related to some of the main health-related quality of life aspects such as motor function, sleep, medication compliance, meal intake timing in relation to medication intake, and physical exercise. A mock-up demonstrator for the interface was developed using UCD methodology in collaboration with PD patients. The research work was performed as an iterative design and evaluation process based on interviews and observations with 11 PD patients. Additional usability evaluations were conducted with three information visualization experts. Contributions include a list of requirements for the interface, results evaluating the performance of the patients when using the demonstrator during task-based evaluation sessions as well as opinions of the experts. The list of requirements included ability of the patients to track an ideal day, so they could repeat certain activities in the future as well as determine how the scores are related to each other. The patients found the visualizations as clear and easy to understand and could successfully perform the tasks. The evaluation with experts showed that the visualizations are in line with the current standards and guidelines for the intended group of users. In conclusion, the results from this work indicate that the proposed system can be considered as a tool for assisting patients in better management of the disease by giving them insights on their own aggregated symptom and medication information. However, the actual effects of providing such feedback to patients on their health-related quality of life should be investigated in a clinical trial.
PurposeThe purpose of the research is to assess security concerns in government's use of Blockchain technology through the lens of value focused thinking (VFT) approach.Design/methodology/approachQualitative methods such as open ended questions and interviews were used to gather data and the data was analysed in a structured approach to formulate a means-ends network of objectives. The data were collected from eight interviews of selected participants.FindingsThe findings are 35 objectives of which ten are fundamental objectives related to the values of identity, trust, data privacy, transparency, integrity, public service delivery, cost, availability of public information, responsibility and usability.Practical implicationsThe study implies that governments or private organisations building blockchain solutions for governments can benefit from insights on values to focus on in blockchain security; and the current research serves as a base to understand more on blockchain use in the governments as well as security values and application of VFT approach for future academic researchers in this area.Social implicationsIt is a need-driven approach in which blockchain is assessed to ensure its fit to societal needs and public values.Originality/valueIt is first of its kind in studying security in blockchain use by government through the lens of VFT approach, and it provides insights of values that are of importance to further blockchain use in the government.
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