Background Population ageing is a current challenge for the European society. Specifically, People with Down Syndrome (PDS) are living longer than before, reaching some of them around 60 years old. However, it is known that they show premature ageing that in some cases may be misled with Alzheimer first signs. Hence, it is crucial to promote an Active Ageing (AA) and healthy living in this specific population by keeping their cognitive, physical and emotional functions, and also promoting social activities such as community participation. In such way, their Quality of Life (QoL) will be increased. Objectives The main objective of this study was to co-design a Training Program (TP) to promote AA in PDS, professionals, relatives and/or caregivers, on the framework of the DS-AGEING project (2018-1-ES01-KA204-050733). Results Co-creation sessions with PDS, professionals and relatives/informal caregivers from Spain, Portugal, Slovenia, Rumania and Greece were carried out to determine contents, methodology and materials of the TP. This methodology allows meeting their real needs but also it promotes inclusion. The resulting TP is formed by the next topics (and its subtopics): active ageing, cognitive functioning (attention, memory, executive functions, praxis, gnosis, etc.), facing transition events, physical health (healthy habits & postural control). Training will be performed by 3 types of activities: face-to-face, practical and e-training. Co-validation sessions with end-users were conducted to validate the TP. Also, an e-training platform to support the TP implementation will be designed. Conclusions An easy, practical and flexible TP was co-created to be adjusted to each PDS and to be used by any person with/without experience in training. In such way, this study has a holistic perspective as cover all end-users needs: PDS will be able to train in the affected areas and professionals and relatives will have tools to assist them in the training. Key messages This co-created TP will be a tool for professionals and relatives/caregivers to foster AA and increase QoL of PDS. This study will promote an early detection of deterioration symptoms and the preservation of abilities in PDS.
Numerosas investigaciones han intentado determinar las variables implicadas en la génesis y mantenimiento del Trastorno Obsesivo-Compulsivo (TOC). Recientemente, se han propuesto la evitación del daño y la sensación de inacabado como dos dimensiones nucleares motivadoras de la sintomatología obsesivo-compulsiva. El objetivo de este estudio fue analizar el papel de la evitación del daño y la sensación de inacabado en su relación con los síntomas obsesivo-compulsivos. Para ello, se realizó un Path analysis en una muestra de 267 personas de la población general (74,5% mujeres; edad media 27,29 años). Los resultados mostraron que la asociación entre evitación del daño y los síntomas de orden y comprobación estaba mediada, en gran medida, por la sensación de inacabado, apoyando una mayor especificidad de esta última en la fenomenología TOC. Futuros estudios deberán corroborar este resultado en muestras clínicas. PalabRas clave Trastorno obsesivo-compulsivo; sensación de inacabado; evitación del daño; orden; comprobación.
Background Rising life expectancy and ageing population are current phenomena that European society is facing and these are challenges for the European healthcare systems. To face them, several e-health solutions are already designed to optimize resources of the healthcare provider system. However, most of them are not being implemented or deployed. Some of the reasons are the lack of digital skills and innovation readiness in staff, and existing barriers to changing organizational practices. Objectives The DISH project (601008-EPP-1-2018-1-DK-EPPKA2-SSA) will develop 3 concepts to improve the digitalization of healthcare staff to help them in the use of e-health solutions already developed: 1)Learning Innovation Units, where healthcare staff, SMEs and educational institutions work together for improving the e-health solutions development and implementation; 2)On the job training, where healthcare staff will be trained in e-health and digital competences; 3)Assessment, where competences accomplished by healthcare staff will be recognized. All these concepts will be tested in 6 EU countries. Results The development of the 3 concepts is based on a needs analysis on present and future competences required to support the implementation of e-health solutions in Denmark, Norway, UK, Germany, Spain and Poland. Also, each country will test the 3 concepts and train 100 healthcare staff in the use of an e-solution/innovation already developed but not being fully implemented. An evaluation of the achieved skills/competences by the staff will be also conducted. Conclusions Healthcare workers and SMEs show willingness and motivation in contributing to the digitalization but there is a clear lack of digital skills (although this is different from country to country) to make easier the adoption in daily practice of such solutions. The project looks for promoting close collaboration between the interested parties to work together in overcoming the stated deficiency. Key messages The DISH concepts will facilitate a training framework for healthcare professionals in the use of digital solutions. The DISH project will promote the use of several innovations already available in the market.
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