This study shows that treatment with CSII resulted in an improvement in HbA1c levels up to 1 yr and decreased the number of severe hypoglycaemic events, but the frequency of ketoacidosis increased. The major challenge is to identify methods to maintain the HbA1c improvement, especially among older children and teenagers, and reduce the frequency of ketoacidosis.
These findings can be useful for diabetes team members in supporting teenagers with diabetes and their parents both in individual meetings and when planning and delivering group education.
This empowerment programme for teenagers with diabetes showed no positive glycaemic or empowerment effects. Empowerment programmes for diabetic teenagers in early and middle adolescence should include parental involvement.
The aim of this study was to test the psychometric properties of the instrument ‘Check your health’ in teenagers with type 1 diabetes. The instrument measures ‘self‐reported health’ and ‘burden of diabetes’. A convenience sample of 199 teenagers, 12–17 years of age, completed the questionnaires ‘Check your health’ and DisabKids when visiting the diabetes clinic. Forty‐seven patients completed the questionnaires at home a second time. In the reliability test, the correlation between test and retest was found to be satisfactory, (0.94–0.62, except for social burden, 0.41). Convergent validity was moderate (0.62–0.38), while the instrument showed good discriminant validity. Self‐reported health and burden of diabetes were different in boys and girls, in patients with good or poor metabolic control or who reported high and low disease severity. The domain burden of diabetes turned out to be very sensitive.
Conclusion: The instrument ‘Check your health’ showed clinical utility in teenagers with diabetes. Reliability and validity tests of the measure showed promising results in Swedish teenagers, and it can probably be used in clinical settings. To further strengthen the convergent validity, it should be compared with other QoL instruments, and to obtain normative values, it has to be used in a larger context.
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