This study investigates the assumption that disabled people want improvements in their functional abilities, or complete cures. Contrary to this assumption, many disabled activists are found to have attitudes in which they refuse treatment that promises a cure. In order to explain this attitude, different sources of disability identity are isolated as potential predictor variables. A multivariate model reveals that self-identity related to a personal affirmation of disability is a significant predictor of refusal of treatment, as is the age of onset of disability. Implications for interactions with medical professionals and utility-based modeling of medical treatment seeking are discussed.

Although a “minority‐group” model has emerged to challenge the traditional dominance of the “functional‐limitations” paradigm for the study of disability, research on attitudes toward disabled people has not produced a theoretical orientation that reflects these developments. This paper proposes a new conceptual framework, based on the fundamental values of personal appearance and individual autonomy, for assessing the “aesthetic” and “existential” anxiety aroused by persons with disabilities. Investigations using this perspective might contribute to determining the attitudinal foundations of the competing models that are dividing research on disability.

No abstract