Aim A partnership involving a Children's Trust, the City Council and a Sleep Charity evaluated a behavioural intervention to provide support to parent/carers and young people to improve sleep patterns. Methods The intervention entailed basic education about sleep, a one-to-one session with a sleep practitioner to create an individual sleep programme and telephone support to empower the parent to carry out the sleep programme at home. Results 39 children completed the intervention and evaluation, median age 8.56 years (range 1.82-15.75 years). 79.5% were male. 75% had a diagnosis of ADHD or were awaiting assessment, the remaining 25% were Looked After or Adopted Children (of whom 10% also had ADHD). Parents' ratings of their child's ability to self-settle to sleep improved from 1.13/10 to 6.73/10 after the intervention (MD 5.62, 95% confidence intervals 4.56-6.69, p<0.05). Children gained on average an extra 2.4 hours sleep a night. The average number of hours of sleep that the child actually got was 6.27 hours at baseline and 8.62 after the intervention (MD 2.35, 95% CI 1.64-3.06, p<0.05). There was a statistically significant improvement in time taken to settle, time to fall asleep, number and duration of night-time wakenings.The primary word used to describe the mood of the child on wakening before the intervention was 'grumpy' and after the intervention was 'happy'. The impact of sleep deprivation on the parents' wellbeing improved for all measures. The overall WEMWBS score improved significantly following the intervention (MD 8.84, 95% CI 5.32-12.36, p<0.05). There was a reduction in the number of illnesses in both parent/ carers and children following the intervention. Although some parents did not find the programme helpful, 100% said they would recommend it to others. Conclusion The evaluation gave us confidence in the delivery model. 'Regular telephone calls and support' and 'Learning about sleep' were the main positive factors. Our partnership working brought together the individual strengths, drive and passion that were critical for delivery, planning, and influencing better provision for families.We have established a strategic group to support local implementation and produced a draft delivery model which we believe is replicable for other areas.
49 pupils had epilepsy, 36 had an annual review (73%). Across the five schools, weight was measured for 74% of school medical appointments. Height measurements varied significantly between the schoolsonly 4% in one school but up to 74% in another. These differences correlated with the extent of physical disability, equipment and school nursing shortages within special schools. Conclusions We implemented training to focus on improving the 3 key standards in managing our special school pupils and their complex needs.We identified the importance of a consistent school nursing service, with improved collaboration between nurses, doctors and administrators to help ensure pupil databases were updated and maintained. Several children require reassessments within the year so it is imperative that our limited appointment capacity is correctly allocated.In summary, by measuring our adherence to these 3 key indicators we aim to improve our multidisciplinary team working, benchmark across our integrated care organisation improving health outcomes for our pupils.Aims Previous studies and guidelines have highlighted the challenge of providing high quality multidisciplinary care for children and young people with cerebral palsy (CP). 1 2 Patterns of admissions for children with CP are concomitant with the severity of the condition. 3 Our aim was to examine the pattern of admission and highlight the provision gap from a DGH perspective for those under 18 as opposed to young people over 18. Methods We conducted a retrospective cohort survey of all patients admitted from 1 st October 2015 to 31 st October 2017 who had a coding of CP. A proforma based on the NICE guideline baseline assessment tool was completed. Data was analysed using Microsoft Excel. Results 55 cases were analysed. 36% were over 18 at the time of admission. Patients over 18 years with CP were more likely to be admitted for surgical and respiratory problems. Patients under 18 were more likely to have orthopaedic intervention as well as admissions for constipation and reflux. The median length of stay for patients with CP was 2 days (IQR 1-3) for patients over 18 years versus 1 day (IQR=0) for patients under 18 years. There was no significant difference in the range of severity of CP between the two groups. Poor compliance to NICE recommendations was identified in both groups. Conclusion The pattern of admission changes in the adult CP group which may reflect the natural progression of the condition. Further work needs to be done to highlight the needs of this vulnerable population within healthcare organisations. The authors would recommend the adoption of a national 0-25 year integrated pathway for young people with cerebral palsy.Aim Many children with sleep difficulties are prescribed melatonin, a hormone playing a key role in the timing of sleepwake cycle, however the drug is costly and evidence for its efficacy is limited.The aim of this study was to evaluate a nurse-led sleep clinic, in which a behavioural sleep programme is delivered, to look at outcomes in...
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