No abstract

Accounts of employment experience with Hepatitis C (HCV) are scarce, particularly within a UK context where few qualitative studies are available. This article reports on a piece of empirical work which sought to explore the experiences of living with HCV in the UK, out of which the experience of employment emerged. Two standout areas of discussion in this article are the degree to which individuals felt protected in disability legislation (i.e. the Disability Discrimination Act, 1995, 2005, now part of the Equality Act 2010) and their experiences of receiving reasonable adjustments in the workplace. This research highlights the apparent lack of acknowledgement that HCV can affect employment and indeed that the difficulties faced by those with HCV are shared by other disabled people. The findings here suggest that where workplaces facilitate or allow reasonable adjustments employees were able to take up the potential that allowed them to work in sustainable ways.

It is now a full decade since Paylor and Orgel (2004) called for social work to ‘wake up’ to hepatitis C (HCV). In that time, a small but significant body of social research has developed which has highlighted the far-reaching social consequences of living with HCV. Using this as a foundation, Paylor and Mack (2010) expanded arguments on the role of social work and identified specific areas where social work might become involved, arguing that the profession is uniquely placed and skilled, to respond and provide support. This article draws on qualitative in-depth interviews with twenty-one people who (had) lived with HCV in the UK, to strengthen and broaden the argument that social work and social care need to urgently take a bigger role in working with people with HCV, given the cross-cutting and wide range of issues that arise. This is the first study which uses participant data to argue for the need for social work involvement and in that it highlights a number of points in the experience where social work support is needed including pre and post diagnosis, whilst on treatment and after treatment.

This article adopts a critical position regarding the 'illness is not disability' debate by framing hepatitis C both as a lived, physical impairment and a socio-cultural disability/illness. This article draws on qualitative in-depth interviews with 21 people who live(d) with hepatitis C in the UK and examines the financial impact of living with hepatitis C and the process of applying and being found eligible for welfare benefits. This article contributes to the discussion around the inclusion of people with HCV within disability studies and argued that there should be greater recognition of the disabling processes and barriers they face in accessing information, support, recognition and treatment. At present, the institutional processes used to define the ability to work and determine eligibility for benefits frequently exclude and marginalize the experience of people with hepatitis C.