Understanding the HSCT scenario in Brazil is challenging due to the lack of a national registry that allows the analysis of results. The partnership between the Brazilian Cellular Therapy and Bone Marrow Transplant Society (SBTMO) and the Center for International Blood and Marrow Research (CIBMTR) allowed the return of Brazilian data registered in the CIBMTR, through the Data Back to Center (DBtC), in a standardized and organized way. With this database it was possible to know the demographic data and the outcomes of transplants performed in Brazil. The spreadsheet was imported into the Power BI desktop, and functions and charts were created. Between 2008 and 2019, 7,264 transplants were reported to the CIBMTR from 24 Brazilian transplant centers. The partnership between SBTMO and CIBMTR, made the Brazilian registry possible and allowed the development of the first Brazilian Summary slides. Despite the difference in the number of cases and of follow-up time, the results in this study were similar to those presented in the US Summary Slides.

To increase the report of Brazilian hematopoietic stem cell transplantation (HSCT) data to the Center for International Blood and Marrow Transplant Research (CIBMTR), the Data Managers Working Group (GTGD) of the Brazilian Society of Bone Marrow Transplants (SBTMO), and the Sao Paulo State Bone Marrow Association (AMEO) developed several strategies since 2016: training data managers (GDs) in national and international HSCT meetings, the development of a free online teaching course (EAD) in Portuguese on Transplant Essential Data (TED), on­line and presential training course for new data managers offered by AMEO, the approval by the National Committee of Ethics in Research (CONEP) of a national multicenter protocol to formalize sharing data of Brazilian transplants with the CIBMTR, and the first multicenter eval­uation our HSCT results using the CIBMTR Data Back to Center. The contract between SBTMO and CIBMTR was signed in 2019 and GTGD of the SBTMO was officially created. These actions resulted in an increase from 24 to 41 transplant centers registered at the CIBMTR from 2016 to 2019. The process of increasing adherence and continuity of HSCT reports to the CIBMTR is complex and requires commitment of all professionals involved HSCT. The success of this process depends on education of the GD and the involvement of all HSCT directors.

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Background: Almost 175 Hematopoietic stem cell transplants are done at our centre each year in a team comprising of 5 physicians. Maintaining the data manually of all these patients, year by year, accurately is a herculean task. Consolidation of this data with the help of prescription records from out patient's cards, phone calls & e-mail is done on a regular basis. We also introduced a Transplant Meeting every fortnightly helping us collect follow-up information more accurately. Methods: Outpatient prescriptions of transplant patients were scanned and data entered into our database on a regular basis. Communications to patients were done regularly by phone calls, email and social media like facebook & whatsapp for their current status. We started a transplant meeting every 2 weeks to improve the accuracy of our database. All consultants, transplant nurses, data manager and coordinators were part of this meeting. Patients were divided in two groups: 1stpatient's upto day +100 and 2nd beyond day +100. All events including CMV reactivation, GvHD, relapse & death were discussed. Reminders were sent for timing of post transplant vaccination. Results: With the practice of regular transplant meetings the data was streamlined. Scanning out patient's prescriptions also helped to follow important pending laboratory reports, informing assigned physicians for early intervention and management if required helped to improve patient care. Conclusion: Regular follow-up post transplant is essential in order to ensure efficacy and safety of stem cell transplant including quality of life. Various modalities are imperative for accurate and updated follow-up data entry.