Background: The recovery movement has become highly influential in research and services for people who experience psychosis. However the precise meaning of recovery from psychosis is contested, and there are concerns that the language of the recovery movement may be co-opted to serve other priorities. Aims: To investigate carers' constructions of the meaning of recovery from psychosis. Method: A qualitative study, using synthetic discursive psychology to analyse transcripts of semi-structured interviews with seven carers recruited from an Early Intervention in Psychosis service, where recovery approaches were practised. Results: We found medical accounts of recovery to be highly influential used both frequently and as a key reference point, even when describing alternative, non-medical accounts of recovery. Such alternative accounts of recovery in the data were fragementary and participants tended to use such accounts to signal some kind of trouble or disruption. Conclusions: Explanations of the objectives of recovery approaches cannot escape comparison with a medical repertoire of recovery. Such explanations may benefit from illustration using personal accounts of recovery that contain concrete detail. Creating conditions of safe uncertainty around the meaning of recovery may be an important aim for clinicians and services.
Preliminary findings revealed that young people possess limited knowledge about the Hospice identity and clients. When asked what would be most imported for them at Hospice, students commented on the environment and facilities, person-centred care, and effective care. Finally, the environment, facilities and expansion of Hospice IoM were the main areas of improvement suggested by young people. Conclusion: The preliminary results provide an insight into the views of young people towards Hospice IoM and palliative care. The workshops designed for UCM students offer opportunities for broader discussions surrounding attitudes towards death, dying, bereavement and Hospice. These findings will inform future Hospice strategies, and the engagement with youth may empower new relationships between Hospice and the Island's next generation.
Once our new strategy was approved by the Board an extensive community engagement plan was put in place. This provided opportunities to promote our services at high profile events where we invited people with influence from many different backgrounds, asking for their ongoing support. Further community engagement included a wide ranging public awareness campaign. Conclusion Overall the involvement of our community in preparation and dissemination of our new strategy has proved very worthwhile. To ensure ongoing inclusion of our community in our plans a new hospice advisory group PATH (People Advising the Hospice) has been established.
displayed alerting patients and families. Patients were invited to participate by their key worker. Full explanation was given to participants, with consent obtained prior to filming. Patients without capacity were excluded but their relatives included. The Clinical Lead had increased visible presence during the 13 weeks filming across clinical areas ensuring equal access to patient stories. Results Some clinical staff were reticent, acting as gatekeepers, impacting on opportunities for patients and families, addressed by Clinical Lead's presence. A surprising number of families showed a willingness to talk at intense critical moments in their journey.Families have valued the lasting legacy this has provided.'If filming highlighted to others what services are provided I feel it has been of benefit' (Patient) Conclusions Patients and families value telling their stories and feeling heard. Barriers to participation of patient involvement have reduced as clinical awareness of therapeutic benefits has grown.
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