Accessible summary• Dementia is an illness caused by damage to a person's brain.• People with learning disabilities, especially people with Down's Syndrome, are more likely to get dementia, and when they are younger.• We talked to people working in community learning disability teams to find out what they thought about services and support for people with learning disabilities and dementia and carers.• Screening and assessments mean that people get diagnosis and support more quickly and other problems are picked up.• More appropriate housing and support is needed so people can stay at home for longer.• Research needs to look at the best ways to support people with learning disabilities and dementia.• It is important to find ways to involve people with learning disabilities and dementia and carers in meetings about their support and future research.
AbstractBackground: Dementia prevalence rates are higher amongst people with learning dis-
Background Self-injurious behaviour (SIB) is among the most serious problems faced by intellectual disability services. It is very difficult to treat and can become a chronic problem. Method Information on a number of variables was collected through a survey of service-users identified as displaying SIBs. Clinical opinion and a literature review guided the selection of potential predictors of continued SIB. Univariate statistical analyses were used to investigate associations between continued SIB and each of the variables identified. Variables shown to have a significant association with continued SIB were subjected to a multivariate analysis to isolate those variables that still predicted continued SIB once the influence of the others had been accounted for. Results Two factors, self-biting and verbal ability, were found to independently predict continued SIB. Conclusion The results have implications for intellectual disability services, in terms of the importance of multidisciplinary team working, training and guidelines for problem management.
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