Data was collected in five countries from informal carers of older people (n = 577) via a common protocol. Carers completed: (1) a 17-item version of the Carers of Older People in Europe (COPE) Index, an assessment of carers' perceptions of their role : (2) a questionnaire on demographic and caregiving circumstances : and (3) three instruments included for the criterion validation of the COPE Index (the General Health Questionnaire, the Hospital Anxiety and Depression Scale, and the World Health Organization Quality of Life-BREF). Principal Component Analysis of the COPE Index was followed by internal consistency analysis of emergent components. Scales derived by summing items loading on the components were analyzed for their association with the criterion measures. Two components, negative impact and positive value, emerged consistently across countries. A third component, quality of support was less consistent across countries. Scales derived from the negative impact and positive value components were internally consistent and significantly associated with the criterion validity measures. These two scales and four items drawn from the quality of support component were retained in the final COPE Index. While further testing is required, the COPE Index has current utility in increasing understanding of the role perceptions of carers of older people.

There is a well-documented tendency for cognitive tests to underestimate the abilities of older people in black and minority ethnic groups. This gives rise to a substantially higher risk of mistaken diagnosis of dementia. Reasons include differences in extent or focus of formal education, lack of familiarity with English, lack of literacy in own first language, and culture-specific factors related to individual test items. Attempts to improve the accuracy of screening for these groups have included adaptation of existing tests, including adjustment of cut-points, translation and replacement of culture-specific items. So-called 'culture-free' tests have also been developed, which are less dependent on language, literacy and other skills developed during formal education. Cultural modifications and evidence of cross-cultural performance are summarized here for traditional tests (Mini-Mental State Examination, Short Portable Mental Status Questionnaire, Short Orientation-Memory-Concentration Test, Abbreviated Mental Test Score, Clifton Assessment Procedures for the Elderly), and for culture-free tests (Clock Drawing Test, Mini-Cog, 7-minute screening battery, Time and Change Test). The evidence on unadapted traditional tests shows that short ones perform at least as well as longer ones, and are more consistent across cultural and educational groups. Cut-point adjustments have not been universally found successful in improving accuracy, and do not address issues of acceptability. Translated and/or culturally adapted versions exist for a number of tests: it is important to establish cut-points appropriate to the target populations. There are promising results on culture-free tests, which are seen as less threatening and require little language interpretation, but they require further evaluation.

The PSC was developed to be a brief and easy-to-use tool, intended to facilitate a standardized approach for health care providers to identify long-term problems in stroke survivors and to facilitate appropriate referrals for treatment.

Purpose -One in 14 people over 65 years suffer from dementia in the UK. Over 25 per cent are receiving antipsychotics, which cause increases in mortality and cerebrovascular events. The need for a reduction and the use of alternative supportive strategies has been advocated. Risperidone at six-week intervals is the only antipsychotic licensed for treatment with regular review. The majority of management occurs at primary care level and in care homes. The purpose of this paper is to investigate antipsychotic prescribing practices and patient review in these settings.Design/methodology/approach -In total, two surveys comprising questions addressing prescribing practices were developed and distributed electronically to all GP practices and care homes in Coventry and Warwickshire, West Midlands, England.Findings -The majority of GPs (75 per cent) reported only ''occasional'' discontinuation of antipsychotics due to concerns at reducing drugs on their own, expectations of regulation from secondary care and resistance from care home staff. Poor reduction levels were reported in care homes, attributing low numbers to reluctance among GPs. History of cardiovascular risk factors did not appear to influence withdrawal. Only 40 per cent of GP practices maintained sole use of risperidone. At least six-monthly reviews were reported by 63 per cent of GPs and 64 per cent of care homes, with very few conducting reviews at least three-monthly. The importance of non-pharmacological alternatives was emphasized, yet access was limited and highly resource-dependent.Originality/value -This study reveals the perspectives of staff delivering healthcare for people with dementia and behavioural and psychological symptoms of dementia (BPSD). Potentially inappropriate antipsychotic principles were reported. A lack of communication and uncertainty of roles was evident. The development of understandable guidelines for healthcare workers and care home staff managing behavioural issues in patients with dementia is necessary.