The assessment of the quality of life of children is continuously connected to their chronic health problems. In our opinion, the optimal indicator of the quality of life of children is the Pediatric Quality of Life Inventory TM questionnaire (PedsQL TM ) because foreign literature is rich in its results. The validated PedsQL TM questionnaires are used to assess the quality of life of children and adolescents and their families.The goal of this article is to broaden the knowledge of medical and social workers in using these questionnaires in the case of selected disorders (ADHD and autism). The objective of this study is to verify the content and reliability of questionnaires that are used for the assessment of the quality of life. This study focuses on children with chronic disorders of ADHD and autism. We used the method of document content analysis. We searched for relevant sources in scientific databases -WOS, Pubmed, ScienceDirect, Scopus.PedsQL TM questionnaires are globally used for children with ADHD and autism. They are used for the assessment of the quality of life of children with the mentioned disorders and their families.The questionnaires do not focus only on the quality of life of individuals but families in total. It is one of the few questionnaires that assess the impact of such disorders on families.

PedsQL validita reliabilita kvalita života dotazník s o c i á L n í V ě d y a z d R a V í Článek citujte takto: Baloun I, Velemínský M. Validation of PedsQL TM guestionnaires for assessing the quality of life in children and their families.

Objective: Care of handicapped or elderly by the family members in the home environment brings not only many positives for the care recipients, but can also impose a significant burden on the caregiver. The goal of the study was to assess the caregiver burden, burnout syndrome and the effect of caregivers’ sociodemographic characteristics. Design: Cross-sectional study. Participants: The sample consisted of 168 caregivers who took care of disabled children or seniors. Methods: Zarit Burden Interview identifying the subjective burden of informal caregivers, and Maslach Burnout Inventory assessing the burnout syndrome were used. Results: A higher level of caregiver burden and the development of burnout syndrome occurring most frequently in the dimensions of Emotional Exhaustion and Personal Accomplishment was observed. The caregiver burden was found to be lower in men, in caregivers living alone, and in the respondents from higher income households; it increased with the weekly amount of care. Conclusions: The results proof the demanding nature of informal care. A longitudinal study could illuminate the temporal changes in the family dynamics.

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The evaluation of the quality of life is an important component of considering biopsychosocial situations in children suffering from chronic diseases. Design: Pilot studyThe sample group and methods: Children with diagnoses Diabetes Mellitus, Autistic Spectrum Disorder (ASD), Attention Deficit Hyperactivity Disorder (ADHD) and Cerebral Palsy (CP) were monitored together with their parents. The control group comprised ten healthy children and their parents. PedsQL questionnaires, marked PedsQL 4.0, PedsQL 2.0 -family module, were employed. The so called survey questionnaire was used for the quantitative research. The qualitative research was implemented with the help of a semi-structured dialogue with parents. The statistical processing was based on non-parametric Kruskal-Wallis Tests/for independent sampling) and Wilcoxon Test (paired comparison). In all the tests, the significance level (α) of 0.05 was chosen. The qualitative research was processed by the Atlas.ti program with establishing 600 open codes and with origination of nine categories. Conclusion: Differences in the score axis in five groups of respondents resulted in refusing the zero hypothesis H0, i.e. the results were different throughout the questionnaires. The results of five paired subgroups demonstrated that there were most frequent differences between controls and subgroups of children with autism and ADHD. Results of the qualitative research are summarized in the section Results. PedsQL TM questionnaires were applicable to all the families. Children with the autistic spectrum disorder encountered problems with the PedsQL TM questionnaire -they were unable to complete the questionnaire and they did not understand the questionnaire scale.