<b><i>Introduction:</i></b> Clinical and laboratory studies demonstrate that placebo and nocebo effects influence various symptoms and conditions after the administration of both inert and active treatments. <b><i>Objective:</i></b> There is an increasing need for up-to-date recommendations on how to inform patients about placebo and nocebo effects in clinical practice and train clinicians how to disclose this information. <b><i>Methods:</i></b> Based on previous clinical recommendations concerning placebo and nocebo effects, a 3-step, invitation-only Delphi study was conducted among an interdisciplinary group of internationally recognized experts. The study consisted of open- and closed-ended survey questions followed by a final expert meeting. The surveys were subdivided into 3 parts: (1) informing patients about placebo effects, (2) informing patients about nocebo effects, and (3) training clinicians how to communicate this information to the patients. <b><i>Results:</i></b> There was consensus that communicating general information about placebo and nocebo effects to patients (e.g., explaining their role in treatment) could be beneficial, but that such information needs to be adjusted to match the specific clinical context (e.g., condition and treatment). Experts also agreed that training clinicians to communicate about placebo and nocebo effects should be a regular and integrated part of medical education that makes use of multiple formats, including face-to-face and online modalities. <b><i>Conclusions:</i></b> The current 3-step Delphi study provides consensus-based recommendations and practical considerations for disclosures about placebo and nocebo effects in clinical practice. Future research is needed on how to optimally tailor information to specific clinical conditions and patients’ needs, and on developing standardized disclosure training modules for clinicians.
Marjolein de Vries, Anne Land-Zandstra and Ionica Smeets Many citizen science developers agree that participants in citizen science projects need to receive feedback on project outputs and that they should be recognized in results and publications. However, little research has thoroughly investigated the extent to which citizen scientists find communication of scientific output to be important. Citizen science studies rarely investigate this topic as their main goal. Therefore, we conducted a review on participants' preferences for communication of data, findings, and scientific publications in papers that focus on participant motivation but which also contain relevant evidence about communication in parts of the results. We reviewed 32 peer-reviewed papers that contained relevant evidence in quantitative analyses (e.g., Likert scale-type questions) or in qualitative analyses (e.g., interviews with participants).From this review, we conclude that participants value accessibility of their collected data, communication of project findings, and acknowledgement in publications. Taking this into account can pay off, as sharing data and findings can enhance the motivation of participants to engage in the project, thereby sustaining their participation, imparting the feeling that they spent their time well, and increasing a project's learning impact. Some practical and ethical issues such as privacy concerns, however, need to be taken into account. This literature review is the first to provide an overview of citizen scientists' preferences for communication of scientific output, and is a starting point for further research that should investigate the impact of different options for data sharing and communication of findings to participants.
Abstract. Communication about water-induced hazards (such as floods, droughts or levee breaches) is important, in order to keep their impact as low as possible. However, sometimes the boundary between specialized and non-specialized language can be vague. Therefore, a close scrutiny of the use of hydrological vocabulary by both experts and laypeople is necessary. In this study, we compare the expert and layperson definitions of 22 common terms and pictures related to water and water hazards, to see where misunderstandings might arise both in text and pictures. Our primary objective is to analyze the degree of agreement between experts and laypeople in their definition of the used terms. In this way, we hope to contribute to improving the communication between these groups in the future. Our study was based on a survey completed by 34 experts and 119 laypeople. Especially concerning the definition of words related to water there are some profound differences between experts and laypeople: words like “river” and “river basin” turn out to have a thoroughly different interpretation between the two groups. Concerning the pictures, there is much more agreement between the groups.
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