Technology may be able to play a role in improving the quality of life for Alzheimer's patients and their caregivers. We are evaluating the feasibility of an information appliance with the goal of alleviating repetitive questioning behaviour, a contributing factor to caregiver stress. Interviews were conducted with persons with Alzheimer's disease and their caregivers to determine the nature of the repetitive questioning behaviour, the information needs of patients, and the interaction abilities of both the patients and the caregivers. We report results of these interviews and discuss the challenges of requirements gathering with persons with Alzheimer's disease and the feasibility of introducing an information appliance to this population.
Information about individuals is currently maintained in many thousands of databases, with much of that information, such as name and address, replicated across multiple databases. However, this proliferation of personal information raises issues of privacy for the individual, as well as maintenance issues in terms of the accuracy of the information. Ideally, each individual would own, maintain and control his personal information, allowing access to those who needed at the time it was needed. Organizations would contact the individual directly to obtain information, therefore being assured of using current and correct information.While research has been performed on users owning and controlling access to their personal information in an electronic commerce environment, we argue that this concept should be extended to all user information including, for example, medical and financial information. The end goal is not for users to simply maintain copies of this information, but to be the source of this information. This paper presents the concept of users owning their personal information and introduces some of the issues involved in users being able to control access to this information. The security requirements, including authentication, access control and audit, as well as user interfaces and trust, for this new paradigm are given particular emphasis.
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