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Embryo experimentation raises many ethical questions, but is established as acceptable practice in the UK under the Human Fertilisation and Embryology Act 1990. The development of preimplantation genetic diagnosis (PGD) and embryonic stem (ES) cell research is dependent on couples undergoing in vitro fertilization (IVF) donating for research embryos that are unused in, or unsuitable for, treatment. Rarely is the role of these donors acknowledged, let alone studied. One concern is whether couples feel an obligation to donate embryos because of their gratitude for the IVF treatment they have received. This article, based on an ongoing study investigating the similarities and differences between the views and values of those IVF couples who agree to donate embryos for research and those who refuse to donate embryos, explores the broader issues around embryonic research. Discussions such as this, embedded in a background of empirical research, will assist practitioners and policymakers in assessing the social and ethical contexts of this very important aspect of current and future scientific developments.

THE CARING DILEMMA IN MIDWIFERYBalancing the needs of midwives and clients in a continuity of care model of practice The caring dilemma, first described by Reverby in 1987, denotes the tension caused by being obliged to provide care without the right to determine how that care is to be provided. Such a dilemma is salient in the practice of midwifery based on a continuity of care model that has recently emerged or been implemented in various jurisdictions. Briefly, this model involves the provision of care by a single midwife or pair of midwives to a woman throughout her pregnancy, birth and post-natal period. Continuity of care necessitates that midwives be on call for significant lengths of time to ensure attendance at the woman's birth. It is the on-call nature of this form of midwifery work that most significantly poses a caring dilemma for midwives. In this paper, we trace both the structural and experiential aspects of the caring dilemma through an examination of midwifery in the Canadian province of Ontario. Our analysis reveals that despite being a salient feature of midwifery practice, some work structures can be created to mediate the caring dilemma experienced by midwives.Le dilemme de la prise en charge, que Reverby a évoqué la première fois en 1987, dénote la tension que cause le fait d'être tenu d'offrir une prise en charge sans avoir le droit d'établir de quelle manière l'offrir. L'exemple des sages-femmes, dont la pratique repose sur un type de soin continu qui est récemment apparu ou qu'on vient de mettre sur pied dans diverses administrations, illustre très clairement ce dilemme. Pour résumer, ce modèle veut qu'une femme enceinte soit prise en charge pendant sa grossesse, a`son accouchement et durant sa période postnatale par une ou deux sages-femmes. La continuité de la prise en charge oblige les sages-femmes a`être sur appel durant des périodes prolongées pour que la femme qui accouche bénéficie de leur présence. Pour les sages-femmes, c'est la nature même de leur travail effectué sur appel qui engendre, de façon cruciale, le dilemme de la prise en charge. Dans cet article, nous abordons les aspects structurels et expérimentaux que représente le dilemme de la prise en charge par le biais d'une étude sur la pratique du métier de sagefemme dans la province canadienne de l'Ontario. Notre analyse révèle que, si le dilemme de la prise en charge est inhérent a`la profession de sage-femme, il n'empêche que des structures professionnelles peuvent être mises en place pour en atténuer les aspects négatifs.Mot clés la profession de sage-femme; soigner le travail; le professionel s'intéresse; le client s'intéresse

This article is based on ethnographic research conducted between 1998 and 2000 in British Columbia, Canada. In this article Luce brings together the narratives of queer women she interviewed about their experiences of trying to become parents with her own stories about doing the research. Both sets of stories explore the ways in which relationships between people are reproduced and represented through images of sexuality, reproduction, queerness, parents, and families. Shifting between telling about the tensions she experienced while doing ethnographic fieldwork and retelling women's stories about how their relationships to partners, fetuses, babies, and donors were perceived, the article draws attention to both political and methodological questions.

In this article, I draw on research carried out in Europe, primarily in Germany, on patients' and scientists' perspectives on mitochondrial replacement techniques (MRTs) in order to explore some of the complexities related to collective representation in health governance, which includes the translation of emerging technologies into clinical use. Focusing on observations, document analyses, and interviews with eight mitochondrial disease patient organization leaders, this contribution extends our understanding of the logic and meanings behind the ways in which patient participation and collective representation in health governance initiatives take shape. My findings highlight the ways in which a commitment to a global mitochondrial disease patient community and a sense of patient solidarity influence expressions of support with regard to legalizing mitochondrial replacement techniques. My analyses illustrate how normative practices and expectations of participatory governance potentially foreclose opportunities for sustained collective patient engagement with the complex ethical, social, and political dimensions of emerging technologies and may silence diverse and potentially dissenting embodied and lived responses to the prospects of particular technological developments.