BackgroundHealth research increasingly relies on organized collections of health data and biological samples. There are many types of sample and data collections that are used for health research, though these are collected for many purposes, not all of which are health-related. These collections exist under different jurisdictional and regulatory arrangements and include:Population biobanks, cohort studies, and genome databasesClinical and public health dataDirect-to-consumer genetic testingSocial mediaFitness trackers, health apps, and biometric data sensorsEthical, legal, and social challenges of such collections are well recognized, but there has been limited attention to the broader societal implications of the existence of these collections.DiscussionAlthough health research conducted using these collections is broadly recognized as beneficent, secondary uses of these data and samples may be controversial. We examine both documented and hypothetical scenarios of secondary uses of health data and samples. In particular, we focus on the use of health data for purposes of:Forensic investigationsCivil lawsuitsIdentification of victims of mass casualty eventsDenial of entry for border security and immigrationMaking health resource rationing decisionsFacilitating human rights abuses in autocratic regimesConclusionsCurrent safeguards relating to the use of health data and samples include research ethics oversight and privacy laws. These safeguards have a strong focus on informed consent and anonymization, which are aimed at the protection of the individual research subject. They are not intended to address broader societal implications of health data and sample collections. As such, existing arrangements are insufficient to protect against subversion of health databases for non-sanctioned secondary uses, or to provide guidance for reasonable but controversial secondary uses. We are concerned that existing debate in the scholarly literature and beyond has not sufficiently recognized the secondary data uses we outline in this paper. Our main purpose, therefore, is to raise awareness of the potential for unforeseen and unintended consequences, in particular negative consequences, of the increased availability and development of health data collections for research, by providing a comprehensive review of documented and hypothetical non-health research uses of such data.
Notwithstanding the numerous critiques that have been leveled at the field of positive psychology over its short history, the field and its practitioners continue to enjoy substantial growth and popularity. Although several factors have no doubt contributed to their advancement, work in the field of science studies suggests that rhetorical demarcation in scientific writing, by which scientific fields establish their domains and distinguish themselves from other forms of intellectual activity, may be equally significant. Such "boundary work" is an important means through which fields defeat their competitors, persuade their public, and compete for legitimacy. In light of this, I examine the discursive demarcation and legitimization of positive psychology as performed through historical narratives of its origins in its own writings. I offer an analysis of the ways in which these narratives exploit alternating and contradictory images of scientists, legitimate scientific activity, and in particular, images of American society, to perform the ideological and rhetorical work of describing, and making visible, the kinds of issues and problems for which positive psychology presents itself as the natural solution.
Although there has been considerable empirical scholarship on the psychological dimensions of social justice, there has been less interest in interrogating and clarifying the philosophical and theoretical issues that lie at the intersection of psychology and social justice. The purpose of this special issue is to bring together a range of established scholars with diverse social and political commitments to reflect on some of the philosophical and theoretical issues that emerge when psychologists address social justice in their research and practice. The major themes taken up in this issue include the relationship between the individual and the community, the role that psychology plays both in promoting and in preventing the development of more equitable social and political institutions, and the way that different forms of universalism (e.g., moral, scientific, psychological) inform the struggle for social justice.
The implicit association test (IAT) and concept of implicit bias have significantly influenced the scientific, institutional, and public discourse on racial prejudice. In spite of this, there has been little investigation of how ordinary people make sense of the IAT and the bias it claims to measure. This article examines the public understanding of this research through a discourse analysis of reactions to the IAT and implicit bias in the news media. It demonstrates the ways in which readers interpreted, related to, and negotiated the claims of IAT science in relation to socially shared and historically embedded concerns and identities. IAT science was discredited in accounts that evoked discourses about the marginality of academic preoccupations, and helped to position test-takers as targets of an oppressive political correctness and psychologists as liberally biased. Alternatively, the IAT was understood to have revealed widely and deeply held biases towards racialized others, eliciting accounts that took the form of psychomoral confessionals. Such admissions of bias helped to constitute moral identities for readers that were firmly positioned against racial bias. Our findings are discussed in terms of their implications for using the IAT in prejudice reduction interventions, and communicating to the public about implicit bias.
This discourse analytic study explores constructions of culture and illness in the talk of psychiatrists, psychologists and indigenous healers as they discuss possibilities for collaboration in South African mental health care. Disjunctive versions of what 'culture' is in relation to the illness of a person form an important site for the negotiation of power relations between mental health practitioners and indigenous healers. The results of this study are presented in two parts. Part I explores how a professionalist discourse structured western psychiatric and psychological practice as rational, pragmatic and effective. 'Cultural differences' were variously deployed to support and subvert western psychiatric power. Part II explores the various constructions of African culture'--as 'collectivist' and 'pathogenic'--and the 'African mind'--as 'primitive' and 'irrational'--and how these formulations work to disqualify egalitarian positioning for indigenous healers within formal mental health care settings in South Africa.
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