The purpose of this article is to further develop the concept of family-centered care (FCC) in childhood cancer using Rodgers’ evolutionary method of concept analysis. A search of the existing literature related to the overarching concept of FCC revealed several concept analyses specific to hospitalized children and children with chronic illness; however, none of these were specific to children with cancer. Five defining attributes of FCC in childhood cancer were identified through this concept analysis: ripple effect, customized care, family functioning, collaboration, and communication. A definition of FCC in childhood cancer is offered based on identified characteristics of the concept. Findings of this concept analysis provide a starting point for on-going development of the concept of FCC in childhood cancer and may facilitate more rigorous nursing studies involving FCC in childhood cancer.
Background: Despite limited clinical consensus regarding surgery for tethered oral tissues (“tongue-tie”) for resolving breastfeeding-related issues, the procedure has been increasing in the United States. Greater understanding of maternal experiences with obtaining surgical release may help to improve breastfeeding outcomes. Research Aim: To explore experiences of breastfeeding mothers with infants having undergone “tongue-tie” surgery. Method: This online, cross-sectional, observational survey occurred between August and September 2020. Eligibility included being ≥ 18 years of age and previously or currently breastfeeding an infant with ≥ 1 tissue surgically released. Of 463 screens, 318 mothers were eligible and 115 consented. The final sample was 90. Results: The sample was predominantly white ( n = 86; 95%), non-Hispanic ( n = 84; 93%), married/cohabitating ( n = 85; 94%), and currently providing their own milk ( n = 81; 89%). Difficult latch was the primary reason for seeking help. Participants reported lingual ( n = 84; 93%), labial ( n = 79; 88%), and buccal ( n = 16; 17%) tissue-release, with 80% ( n = 73) reporting > 1 released. For each tissue released, > 80% ( n = 72) of participants felt “very confident” in their ability to correctly identify it and 97% ( n = 87) felt “very involved” and “strongly agreed” with surgical release. International Board Certified Lactation Consultants® were the most frequently identified source of information ( n = 45; 50%) and referrals ( n = 38; 42%), while pediatric dentists most frequently performed interventions ( n = 60; 67%). Conclusions: Participants reported being confident, involved, and in agreement with surgical release and lactation support professionals were frequent information and referral sources.
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