SUMMARY The optimal method for providing mobility for children with myelomeningocele remains controversial. 39 children using a parapodium were compared with 29 children in wheelchairs. There were no significant differences between the two groups for medical complications, use of health‐care services or activities of daily living, although there were differences in the patterns of complications. Children using the parapodium were more likely to develop lesions of the lower extremities, to have dislocated hips, to be more obese and to watch more television; children using wheelchairs were more likely to develop lesions of the gluteal region, to have knee‐flexion contractures and to have fewer fecal accidents. The parapodium was judged by families to be less effective as a mobility aid; however, the upright posture it allows was considered extremely advantageous. A combined approach allowing upright posture and wheeled mobility would appear to be optimal. RÉSUMÉ Aides au déplacement dans les spina bifida de localisation haute: déambulateur contre fauteuil roulant La méthode optimale pour apporter la mobilité aux spina bifida est discutée. 39 enfants utilisant un déambulateur ont été comparés à 29 enfants en fauteuil roulant. Il n'y avait pas de différences significatives entre les deux groupes pour les complications médicales, l'utilisation de services de soins ou l'activité journalière, bien qu'il ait eu des différences dans l'allure des complications. Les enfants utilisant le déambulateur avaient plus de chance de développer des lésions des extrémités inférieures, étaient plus obèses et regardaient davantage la télévision; les enfants en fauteuil roulant développaient plus facilement des lésions fessières, des contractures des genoux et avaient moins d'accidents d'incontinence fécale. Le déambulateur était jugé par les families comme une aide de mobilité moins efficace; cependant la position érigée que permet le déambulateur est considérée comme très avantageuse. Une approche combinée associant la position érigée et la mobilité du fauteuil semble optimale. ZUSAMMENFASSUNG Mobilitätshilfen für Kinder mit hochsitzender Myelomeningocele: Parapodium contra Rollstuhl Es besteht keine Einigkeit über die optimale Methode, Kindern mit Myelomeningocele Mobilität zu verschaffen. 39 Kinder, die ein Parapodium benutzten, wurden mit 29 Kindern im Rollstuhl verglichen. Es fanden sich keine signifikanten Unterschiede zwischen den beiden Gruppen im Hinblick auf medizinische Komplikationen, Beanspruchung medizinischer Dienstleistungen oder Aktivitäten im täglichen Leben, es gab jedoch Unterschiede bei der Art der Komplikationen. Kinder, die ein Parapodium benutzten, entwickelten häufiger Läsionen der unteren Extremitäten, hatten eher dislozierte Hüften, waren adipöser und sahen mehr fern; Kinder im Rollstuhl entwickelten häufiger Läsionen in der Glutealregion, Beugekontrakturen der Kniegelenke und hatten seltener Stulprobleme. Nach dem Urteil der Familien war ein Parapodium als Mobilitätschilfe weniger geeignet, die dadurch gegeb...
With changing health care, progressive care nurses are working in diverse practice settings to meet patient care needs. Progressive care is practiced along the continuum from the intensive care unit to home. The benefits of early progressive mobility are examined with a focus on the interdisciplinary collaboration for care in a transitional care program of a skilled nursing facility. The program's goals are improved functional status, self-care management, and home discharge with reduced risk for hospital readmission. The core culture of the program is interdisciplinary collaboration and team partnership for care of patients and their families. (Critical Care Nurse. 2015;35[3]:62-68)
Improvements in technology have dramatically increased the survival of children with spinal dysraphism. Because this complex condition affects multiple organ systems as well as the psychosocial functioning of the child and family, these children require care from a host of specialists in order to achieve optimum functioning. This article reviews the pathophysiology and discusses the current management of the medical and psychosocial effects of spinal dysraphism. It also briefly discusses strategies for intervention, long-term outcomes, and some controversies regarding care and screening.
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