BackgroundThe purpose of this study is to identify which variables –among those commonly available and used in the primary care setting– best predict mortality in a cohort of elderly dependent patients living at home (EDPLH) that were included in a home care program provided by Primary Care Teams (PCT). Additionally, we explored the risk of death among a sub-group of these patients that were admitted to hospital the year before they entered the home care program.MethodsA one-year longitudinal cohort study of a sample of EDPLH patients included in a home care programme provided by 72 PCTs. Variables collected from each individual patient included health and social status, carer’s characteristics, carer’s burden of care, health and social services received.Results1,001 patients completed the study (91.5%), 226 were admitted to hospital the year before inclusion. 290 (28.9%) died during the one-year follow-up period. In the logistic regression analysis women show a lower risk of death [OR= 0.67 (0.50-0.91)]. The risk of death increases with comorbidity [Charlson index OR= 1.14 (1,06-1.23)], the number of previous hospital admissions [OR= 1,16 (1.03-1.33)], and with the degree of pressure ulcers [ulcers degree 1–2 OR = 2.94 (1.92-4.52); ulcers degree 3–4 OR = 4.45 (1.90-10.92)]. The logistic predictive model of mortality for patients previously admitted to hospital identified male sex, comorbidity, degree of pressure ulcers, and having received home care rehabilitation as independent variables that predict death.ConclusionsComorbidity, hospital admissions and pressure ulcers predict mortality in the following year in EDPLH patients. The subgroup of patients that entered home care programs with a previous record of hospital admission and a high score in our predictive model might be considered as candidates for palliative care.

Workload can be predicted by patients' clinical characteristics. The positive correlation of workload with variables related to disease severity and the negative correlation with variables related to cognitive impairment show that home care nursing in Catalonia is basically demand-oriented.

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To be more fair, the evaluation of the provisions of the Dependence Law should also consider the health status of the patient. With the implementation of this law we can observe difficulties in access to social services for middle class patients. These patients do not have access to public social assistance and cannot pay for a private one. Social services are still an alternative to family care.

Introduction: We are facing a paradigm shift, evolving from a paternalistic model to a deliberative model in which the person-as a patient, relative or carer-takes a protagonist, active, dynamic and directional role, encouraging responsibility, empowerment and shared decisions. In addition, we must consider the tendency to promote a focus on the individual and their environment, which is committed to a partnership between the health and social world and comprehensive care from a population and integrated vision. This change of role implies a link between the community and health systems. In this sense, it has been implemented the Expert Patient Program Catalonia™ (EPPC), an initiative committed to taking responsibility for people with chronic health problems and to promoting self-care. The EPPC is a multidisciplinary initiative based on patient-healthcare professional collaboration and team work. In EPPC, Expert Patient (EP) leads the process and transmits knowledge about their disease to other patients who suffer from the same health problem. The healthcare professional becomes an observer, and only intervenes if it is necessary. The Expert Patient is a