Purpose: People with disability in rural India face multiple barriers accessing healthcare; our hypothesis is that children with intellectual disability suffer the same but little is known about the barriers faced by them. The objectives of the study were to identify the health seeking behaviours of families with children with intellectual disabilities and the barriers they faced accessing healthcare.
Methods: This qualitative study involved interviewing caregivers of children withintellectual disability from a pre-existing community development project in the Sahadoli Kadim block of rural Uttar Pradesh. Semi-structured interviews were also conducted with the local practitioners frequented by these caregivers.
BackgroundPersons with disability are often marginalised and excluded from international development efforts. This case study reviews the success of Uttarakhand Cluster of development NGOs in changing organisational behaviour towards being disability inclusive in their development (DID) activities.MethodsA triangulation of qualitative research methods was used, including key informant interviews, focus group discussions and review of textual data.ResultsThe results synthesise data into Kotter’s framework for organisational change, explaining the different stages of change experienced by the Cluster as it moved towards DID. Development of a disability mission, sharing of capacity and resources, and presence of disability champions were key in the organisations' transition towards DID.ConclusionThis case study demonstrates that the Cluster, a low - cost network, was able to drive organisational change and promote DID.
This chapter explains the causes, types, and importance of disability, and ways in which needs of those with disability can be met through community-based rehabilitation (CBR). It explains how any CBR programme should be based on the principles in the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD). It introduces the World Health Organization (WHO) CBR framework that shows the essential components of a programme. The chapter describes ways to identify people with disability in the community, how to assess their needs, and the importance of linking with community stakeholders and local CBR workers. The chapter goes into detail about the six steps of implementing a CBR programme: screening and assessment, maximizing function, setting up support groups, advocacy, mainstream inclusion, and programme monitoring and evaluation.
The Engage Disability conference was held at Crowne Plaza, Rohini, New Delhi from 25 th to 27 th September 2014. This conference was designed to inspire and strengthen our efforts to see people, regardless of ability, engaging with our faith communities. We had senior representation from most major Christian health organizations and various churches in India including WVI, CHAI, CBM, NCCI, TLM, EHA, CMC Vellore, Compassion, Tear fund, and JAF, Equip India, bible colleges, and various programs working on disability.Over 400 people participated with great enthusiasm, and the delegates included 210 pastors/ theologians/ church leaders and 154 members from various NGOs working in CBR and other disability programs.The conference opened with the leaders praying for the conference and then signing the conference banner with a hand print. All delegates later signed the same banner, and the final conference declaration was signed over the top of this kaleidoscope of colored hand prints. This was a beautiful representation of all Christians giving a hand to work towards the declaration: to see those with disability accompanied, loved, and included in the body of Christ!
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