This is one of the first surveys of public attitudes to dementia to use a validated questionnaire such as the ADQ. The study provides a baseline of attitudes toward dementia for the Bristol and South Gloucestershire areas, against which we will be able to compare changes over time. This is important due to the emphasis in public health campaigns on improving attitudes toward dementia.
We recommend you cite the published version. The publisher's URL is: https://doi.org/10.1177/1471301217752707Refereed: Yes (no note) Disclaimer UWE has obtained warranties from all depositors as to their title in the material deposited and as to their right to deposit such material. UWE makes no representation or warranties of commercial utility, title, or fitness for a particular purpose or any other warranty, express or implied in respect of any material deposited.UWE makes no representation that the use of the materials will not infringe any patent, copyright, trademark or other property or proprietary rights. UWE accepts no liability for any infringement of intellectual property rights in any material deposited but will remove such material from public view pending investigation in the event of an allegation of any such infringement. is associated with differences in attitudes towards dementia.Methods: a modified version of the ADQ was completed by 2,201 participants, either on-line or in written form. Participants also recorded their age, gender and ethnicity as well as whether they worked with people with dementia, or had been personally affected by dementia.Results: increased contact with people with dementia was associated with increases in both total ADQ scores and across both sub-scales reflecting more positive personcentred attitudes toward dementia. The highest levels of increase were found amongst non-white participants.Conclusions: this study is, we believe, the first attempt to look systematically at whether greater contact with people with dementia is associated with changes in attitudes. The results strongly support the contention that increased contact with people with dementia leads to more person-centred attitudes, and by inference, less stigmatising views.Keywords: dementia; Alzheimer's disease; community care; stigma; attitudes; social support.3 BackgroundA key element of government policy within the United Kingdom (UK) and elsewhere has been to build dementia-friendly communities, and to reduce the stigma that people with dementia face (Department of Health, 2012). In order for these aims to be achieved, public attitudes towards people with dementia need to become more person-centred. However, it is unclear how attitudes towards people with dementia are formed and whether, for instance, increased contact with people with dementia, either through work or personal experience alters attitudes.Previously research in this area has typically focussed on attitudes of professionals working with individuals living with dementia (e.g., Kokkonen et al., 2014;Leung et al., 2013;Lintern, 2001) In the wider mental health literature, increased levels of contact have been associated with a positive impact on attitudes and a reduction of stigma (London and 4 Evans -Lacko, 2010;Couture and Penn, 2003;Clement et al, 2015). While there is an assumption that increased contact with people with dementia will break down barriers, improve attitudes and help to overcome stigma, not all research findings suggest ...
Objectives: In the United Kingdom, laparoscopic adjustable gastric banding (LAGB) surgery is an option for obese individuals who meet the National Institute for Health and Clinical Excellence criteria. Despite the many benefits of LAGB, there is a paucity of literature exploring the long-term impact on individuals. The present study explored how people make sense of the experience of being banded from pre-to five years post-surgery. Design:A prospective longitudinal qualitative study utilising interpretative phenomenological analysis.Methods: Semi-structured interviews were undertaken pre-banding, at six months, then annually up to five years post-banding with seven individuals.Results: Pre-banding participants described the stigma associated with being overweight and unwelcome in society, the need for support, preparations for being banded, and their expectations of successful weight loss with a concomitant return to normality. Post-banding revealed the inadequacy of participants' previous preparation for real life with the band. That, plus some support-related problems, meant at five years post-banding participants still had concerns about whether their eating issues had been addressed, and all were still dependent on the band to control their food intake. Conclusions:Five years post-banding and changed eating behaviours are still not habitual, the weight loss has not been to the extent originally predicted, and their stated aim (the return to normality with the knowledge of how to manage their weight with the band), remains in the future. Improved preparation and support are clear needs for this patient population to achieve a normal life free from stigma, others' revulsion and pity.
BackgroundProblems are missed in up to 50% of primary care consultations. This is costly for the NHS, both in terms of reconsultation rates and in missed opportunities to increase patient empowerment. Research suggests that interventions at each end of the consultation can help to address patient concerns. At consultation initiation, sharing the results from electronic patient-reported outcome measures (ePROMs) with clinicians can help to elicit concerns. At consultation closure, providing the patient with written information to supplement spoken can improve recall and adherence.Aims and ObjectivesAim: To develop and test a complex intervention designed to more comprehensively address patients’ concerns in general practice, thereby reducing re-consultation rates, improving patients’ well-being and health knowledge, reducing health concerns and increasing patients’ confidence in their health provision and health plan. The aims will be achieved through two studies. Firstly a complex intervention will be designed, which uses an ePROM at consultation opening and a report printed or texted at consultation closure. Secondly, this intervention will be tested to establish the feasibility both of the intervention and of a randomised control trial (RCT) of the intervention.Methods1. Intervention Design Study: This will involve:1. Design of an online questionnaire system using practice SMS/email systems and online survey software to allow patient self-completion of a pre-consultation questionnaire and a report showing low-scoring questionnaire items, which is shared with GPs or nurses.2. Testing the pre-consultation system with 45 patients in 3 rounds, using a person-based approach, with iterative adjustments made based on patient, administrator, receptionist, nurse and GP feedback after each round.3. Design of an electronic template, integrated with the patient record, to provide a printable consultation-closure report to patients on issues raised in the consultation, advice given, treatment, follow-up and safety-netting.4. Testing the consultation-closure report iteratively with 45 patients in 3 rounds, using a person-based approach, with iterative adjustments made based on patient and GP/nurse feedback after each round.2. Feasibility Study: The intervention will be tested in a cluster-randomised framework as follows:1. Refinement of the intervention and update to programme theory.2. Randomisation of six practices: four randomised to intervention, and two to control.3. Recruitment of 30 patients per practice: 120 intervention and 60 control.4. Data Collection of quantitative data via GP/nurse-report, patient-report and health records. Interview of GPs, nurses, practice manager, administrators and receptionists and up to 30 patients.5. Realist evaluation of the data to identify and understand the mechanisms by which outcomes have occurred within the programme theory.6. Data analysis of recruitment rates, follow-up rates, data completeness, re-consultation rates within one/three months and other outcomes measures to assess feasibility of a future RCT.7. Evaluation of pre-agreed success criteria to decide whether to continue to RCT, stop, or modify the intervention.Timelines for deliveryStudy 1 will be completed from October 2019 – March 2021 and study 2 from April 2021 – April 2022.Anticipated impact and disseminationResults will be disseminated through targeted communications in social media, the University of Bristol website, policy briefings, academic papers, patient participation groups, community associations and seminars and conferences. The study output resources will be made available for immediate use. If progression criteria are met, we will aim to complete a randomised control trial within five years.
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.
customersupport@researchsolutions.com
10624 S. Eastern Ave., Ste. A-614
Henderson, NV 89052, USA
This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.
Copyright © 2024 scite LLC. All rights reserved.
Made with 💙 for researchers
Part of the Research Solutions Family.