By only looking at the biomedical significance of this new syndrome, we will miss important aspects of how this illness is being experienced and understood. In our future dealings with NS, we will have to consider and re-conceive the relation between culture and neurobiology.

Nodding syndrome is an unexplained affliction that has affected thousands of children in post-conflict northern Uganda, South Sudan and in Tanzania. This study focuses on the sudden rise of nodding syndrome in the Ugandan public discourse, based on 369 newspaper reports over a timespan of 4.5 years and interviews with journalists, politicians, caretakers and health workers during 15 months of fieldwork in Kitgum district. The news coverage of nodding syndrome follows a non-linear trajectory, increasing at the end of 2011 and declining a year later. Attention is paid to the conceptualization of nodding syndrome in media reports, linked to the formation of public opinion and management of the affliction. Different settings elicit different concepts and it is therefore necessary to contextualize illness and focus on processes of formation.

This paper presents a comparative study on conceptualizations of the poorly understood nodding syndrome (NS) in Uganda and Tanzania. NS has been constructed as a biomedical category to serve global health discourse as well as national contexts of managing the condition. The paper looks into the shifting meanings and conceptualizations of NS in the affected areas of Kitgum (UG) and Mahenge (TZ) district. The perceived universality of biomedical classifications is problematized as conflicting with the specific contexts of lucluc and kifafa cha kusinzia. Reconciliation proves to be challenging, poignantly evoking the cultural construction as such of any medical condition.

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