PURPOSE: The purpose of this study was to describe and analyze methods of bowel emptying among Germans living with spina bifida. We also analyzed relationships between age, sex, level of spinal bifida anomaly, and methods of bowel elimination. DESIGN: A quantitative, descriptive study. SUBJECTS AND SETTING: The sample comprised 88 persons (56 women and 32 men) residing anywhere in the Federal Republic of Germany. Their mean age was 17.5 years (SD 13.64 years), range 0 to 55 years. METHODS: Data were collected through an online survey questionnaire developed for the urological follow-up protocol for patients with spina bifida. Parents completed the questionnaire for participants younger than 18 years. RESULTS: Twenty participants (22.7%) reported normal defecation and 68 (77.3%) reported neurogenic bowel dysfunction requiring regular bowel management. Participants requiring bowel management predominately used rectal irrigation (40.9%) and digital rectal stimulation (27.3%) to enhance bowel evacuation. Age emerged as the only factor related to the bowel management techniques. Younger participants (≤20 years) were more likely to use rectal irrigation for bowel evacuation (P = .001, Fisher's exact test), whereas older respondents (≥21 years) were more likely to use digital rectal stimulation (P = .015, Fisher's exact test). Analysis revealed no differences in methods of bowel evacuation based on sex or level of spina bifida anomaly (cervical, thoracic, lumbar, or sacral). CONCLUSIONS: Rectal irrigation was the most common method for bowel evacuation. Participants were less likely to employ potentially effective and more conservative measures for intestinal emptying, such as toilet training/timed evacuation associated with Valsalva maneuvers, abdominal press, abdominal massage, and digital rectal stimulation. Additional comparative studies with more participants and other countries with intestinal emptying methods are needed to better understand the needs of individuals with spina bifida and their families and to improve the health-related quality of life of these people.

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Objective: To analyze meaning in life, satisfaction with life, and the influence of sociodemographic variables in Brazilians with Spinal Cord Injury (SCI). This was a quantitative, cross-sectional, and descriptive study. Participants: Adults with traumatic SCI. Methods: The data were collected through the Survey Monkey platform using the Meaning in Life Questionnaire and the Satisfaction With Life Scale; the sample was composed of adults 18 years old or older with Traumatic SCI. Results: Most of the participants were male (75.5%), with a mean age of 36.22. The average score on the Satisfaction With Life Scale was 21.26, which corresponds to the Slightly satisfied category. The mean scores, respectively, for search and presence of meaning in life were 22.61 and 25.32, indicating that most participants find life meaningful even though they don’t explicitly search for meaning. There were significant associations between satisfaction with life and the meaning in life. Conclusion: In the rehabilitation process for people with Traumatic SCI, the assessment of satisfaction and the meaning of life must be managed together along with other psychological variables. Considering the complex life context of people suffering from a Traumatic SCI, there is a need for both holistic and individualized understanding during the rehabilitation process.

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