BackgroundSwiss legal norms with regard to the end of life situations changed substantially when the revision of the Swiss Civil Code (division III) took effect in January 2013, giving a formal legal status to advance directives (AD) and to the therapeutic representative.AimIn our study, financed by the Swiss National Science Foundation (PNR67), we ask how these legal norms (AD in particular) are applied to and used in decision making by family doctors. Do they shape decisions and action of family doctors and how? How are they interpreted and adapted to the situation and to concrete needs?MethodsBased on content analysis of focus group interviews (91 family doctors, 72 nurses and 21 relatives in three cantons, one in each linguistic region),ResultsWe find three types of perception of the usefulness of AD for decision making in end-of- life situations and their management: Theymake it more difficultfacilitatedo not impact on doctor’s behaviour.Discussion and conclusionAs we do not find consensus on their utility, we also find dissensus about the advance directives as a tool for communication and about the relief experienced by the patient in controlling his/her end of life by this legal instrument. We also find differences between cantons: the degree of importance attached to AD, the time when AD are used (critical time or at the beginning of end of life) and the level of use. These differences are partly due to differences in the palliative care structures in a federal system.
Présentés comme un chaînon manquant entre la police et les travailleurs sociaux hors murs, les correspondants de nuit sont apparus récemment en Suisse romande. La présente étude, menée dans deux lieux urbains, décrit l’imbrication du travail de ces acteurs de la rue. Elle permet de montrer que l’arrivée des seconds a engendré des questions sur leur légitimité par rapport aux premiers, déjà présents, tant du point de vue de leurs activités (l’animation de projets) que des espace investis (les quartiers). Elle indique également qu’un certain nombre d’activités permettent de dessiner des frontières professionnelles entre les deux types d’acteurs, notamment en regard de la manière différente d’échanger les informations ou d’interagir avec la police. Enfin, elle met en évidence que chaque dispositif relève d’une logique locale, les acteurs entretenant des relations apaisées dans la ville périphérique alors que leur collaboration s’avère plus tendue dans la ville centrale. Ainsi, les frontières professionnelles demeurent floues entre les deux groupes d’acteurs tandis que le processus de professionnalisation de leur travail est en cours.
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