Earlier discussions about end-of-life planning before the diagnosis of a life-limiting illness would be beneficial. Lacking is a consistent approach to determining capacity for individuals with an intellectual disability. The findings from this review provide a foundation for a decision tree in end-of-life decision making for individuals with an intellectual disability.
Purpose:
Autistic disorder (AD), Asperger’s syndrome (AS), and pervasive developmental disorder–not otherwise specified (PDD-NOS) have been removed from the Diagnostic and Statistical Manual of Mental Disorders–Fifth Edition (DSM-5). It now contains the autism spectrum disorder (ASD) diagnosis. This study assessed how people with AD and AS felt about the DSM-5 ASD criteria.
Method:
Phenomenological analysis of discussion forum dialogue among participants (N = 76) with AD and AS was conducted.
Results:
Discussions demonstrated agreement that the PDD-NOS diagnosis should be removed from the DSM-5. People with AD and AS were concerned about the inclusion of medical or neurobiological research, functioning, reciprocity, and gender bias in the ASD diagnosis.
Discussion:
Social workers should acknowledge the feelings of people with AD and AS when they use the DSM-5.
The Diagnostic and Statistical Manual of Mental Disorders (5th ed. [DSM-5]; American Psychiatric Association, 2012 ) now includes a new autism spectrum diagnosis (ASD) with previous separate diagnoses of autism removed. This study explores the concerns of people with Asperger's syndrome (AS) and autistic disorder (AD). Discussion forum data of people with AS and AD (N = 76) were analyzed using phenomenological, inductive-content analysis to gather qualitative data about the concerns of people with AS and AD regarding the changes in the DSM-5. People with AS and AD were concerned about identity, community, the cure movement, and services. They also discussed using advocacy and solidarity to address their concerns.
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