Down syndrome is a commonly encountered condition within genetic counseling. In contrast to other, rarer genetic causes of intellectual disability, public narratives about Down syndrome exist (Thomas, 2021). In addition, the syndrome stands out as one of few genetic conditions for which prenatal screening has been widely adopted in recent decades (Boyd et al., 2008).Guidelines for communicating a diagnosis of Down syndrome recommend the genetic counseling to include the potential future family life (Sheets, Crissman, et al., 2011). Studies suggest that both parents and genetic counselors believe that information about the
ObjectivesVideo-assisted debriefing (VAD) of real-life obstetrical emergencies provides an opportunity to improve quality of care, but is rarely used in clinical practice. A barrier for implementation is the expected mental reservations among healthcare providers. The aim of this study was to explore healthcare providers’ perceptions and expectations of VAD of real-life events.SettingParticipants were recruited from two Labour and Delivery Units in Denmark. In both units, VAD of real-life obstetrical emergencies had never been conducted.Participants22 healthcare providers (10 physicians, 9 midwives and 3 nursing assistants). During the study period (August–October 2021), semi-structured, individual interviews were conducted. Interviews were analysed using thematic analysis.Primary and secondary outcome measuresA qualitative description of healthcare providers’ perceptions and expectations of VAD of real-life events.ResultsThree major themes were identified: (1)Video-assisted debriefing (VAD) as an opportunity for learning:All participants expected VAD to provide an opportunity for learning and improving patient care. All participants expected the video to provide a ‘bigger picture’, by showing ‘what was actually done’ instead of ‘what we believed was done’. (2)Video-assisted debriefing (VAD) as a cause for concern:The primary concern for all participants was the risk of being exposed as less competent. Participants were concerned that being confronted with every minor detail of their clinical practice would enhance their self-criticalness. (3)Preconditions for video-assisted debriefing (VAD):Participants emphasised the importance of organisational support from management. In addition, creating a safe environment for VAD, for example, by using only expert debriefers was considered an essential precondition for successful implementation.ConclusionsThe risk of being exposed as less competent was a barrier towards VAD of real-life events. However, the majority found the educational benefits to outweigh the risk of being exposed.
Objective To examine women and their partners’ experience of major postpartum haemorrhage (PPH). Design A qualitative interview study. Setting Two Labour and Delivery Units in Denmark. Population Women who experienced major PPH (≥1 litre within 2 hours after vaginal birth). Methods Semi‐structured interviews were conducted with 15 women and nine partners (nine joint interviews, six individual interviews). Interviews were analysed using thematic analysis. Main outcome measures A qualitative description of women and their partners’ experiences. Results Three major themes were identified. (1) ‘From birth to emergency’ included factors that increased concern in women and their partners, such as ‘incomprehensible’ medical terminology, a tense atmosphere, and alarm call. Transfer to the operating theatre was experienced as the most devastating part of major PPH. (2) ‘Feeling safe during an emergency’ described factors that supported the women and their partners’ management of the situation such as brief explanations from a few healthcare professionals and reassurance that the healthcare professionals were in control of the situation. The pain was experienced as severe, but acceptable. (3) ‘Family unity challenged’ described how family bonding was supported by positioning the partner at the head of the bed and by keeping the baby on the woman's chest. Conclusions Several factors such as small gestures from healthcare professionals and appropriate organisation of the PPH can make a difference to the woman and her partner's experience of major PPH. Particularly, efforts that support family bonding are greatly valued by women and their partners.
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