Families may benefit from enhanced communication around EOL planning, both within the family and between the family and medical team. Future research should investigate a potential role for medical teams in supporting intrafamily communication about EOL challenges and should examine how communication between medical teams and families can be facilitated as EOL approaches.

We would like to express our appreciation of the pediatric palliative care professionals who participated in this study. We also thank the professional organizations that allowed us to distribute study information to their members.

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