Told from the perspective of two UK-based early career researchers, this article is an examination of contemporary challenges posed when dealing with the ethical principle of anonymity in qualitative research, specifically at the point of dissemination. Drawing on their respective doctoral experience and literature exploring the difficulties that can arise from the application of anonymity with regard to historical and geographical contexts, the authors question the applicability of the principle of anonymity alongside pressures to disseminate widely. In so doing, the article considers anonymity in relation to the following: demonstrating value for money to funders; being accountable to stakeholders; involvement in knowledge transfer; and the demands of putting as much information 'out there' as possible, particularly on the internet. In light of these pressures, the article suggests that the standard of anonymity in the context of the 21st century academic world may need to be rethought.
The focus of this article is participatory research with and by people with learning disabilities. Drawing on discussions that took place across a series of seminars, we use the concepts of space and boundaries to examine the development of a shared new spatial practice through creative responses to a number of challenges. We examine the boundaries that exist between participatory and non-participatory research; the boundaries that exist between different stakeholders of participatory research; and the boundaries that exist between participatory research with people with learning disabilities and participatory research with other groups. With a particular focus on participatory data analysis and participatory research with people with high support needs, we identify a number of ways in boundaries are being crossed. We argue that the pushing of new boundaries opens up both new and messy spaces and that both are important for the development of participatory research methods.
BackgroundThis study explores the training involved when people with learning disabilities take their place in the community as researchers. This was a theme in a recent UK seminar series where a network of researchers explored pushing the boundaries of participatory research.MethodAcademics, researchers with learning disabilities, supporters and other inclusive researchers considered important themes arising from presentations about developments in participatory research. The paper emerges from critical reflection on these rich discussions.ResultsA seminar series is a form of research training and capacity building, albeit a dynamic, interactive and collegial one. More formal training in research skills for people with learning disabilities is being developed but raises questions regarding the best contribution people with learning disabilities can make to the research process.ConclusionThere are various models of training for inclusive research, but these need to be reciprocal if they are not to undermine the inclusive goal.
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