Caregivers of young children with hearing loss make decisions about which communication mode/s and spoken language/s their children and family will use. Influences on decision-making about communication were examined for 177 caregivers of Australian children with hearing loss through a questionnaire. The majority of the 157 children used speech as part or all of their communication system (n = 138, 87.9%), and approximately one-third of the children (n = 52, 33.1%) currently or had previously used sign as part or all of their communication system. Twenty-two (14.0%) children and 35 (19.8%) caregivers used a spoken language other than English. Four themes emerged from the qualitative analysis of caregiver responses about the most important influences on their decision-making. Theme one identified caregivers’ sources of information, including advice from professionals, family, and friends, as well as caregivers’ own research and preferences. Theme two related to practicalities of communication within the family and the community, as well as the need for one language or communication mode to be acquired before another was introduced. Theme three described the influence of children’s individual characteristics on caregivers’ decision-making, including children’s ability to access speech through audition, communication skills, additional disabilities, and children’s own preferences about communication. Finally, in theme four caregivers expressed their hopes for their children’s future lives, specifically fostering a sense of belonging, creating future opportunities and successes, and giving children the opportunity to choose their own method of communication. The findings can assist families and professionals to make informed decisions about children’s communication.
The employment and work experiences of mothers who care for young children with special health care needs is the focus of this study. It addresses a gap in the research literature, by providing an understanding of how mothers' caring role may affect employment conditions, family life, and financial well-being. Quantitative data are drawn from Growing Up in Australia: The Longitudinal Study of Australian Children. The current study employs a matched case-control methodology to compare the experiences of a group of 292 mothers whose children (aged 4-5 years) with long-term special health care needs with those mothers whose children were typically developing. There were few differences between the two groups with regard to job characteristics and job quality. There were significant differences between the two groups with regard to work-family balance. Fewer mothers with children with special health care needs reported work having a positive effect on family functioning.
OVER THE PAST DECADE, researchers and policy-makers have increasingly affirmed universal early childhood education and care (ECEC) services as the best way to provide equitable ECEC to all children. While evidence suggests that Australian ECEC services are trying to engage vulnerable children and their families, some of the most vulnerable do not avail themselves of universal services. ECEC programs that specifically focus on vulnerable families may provide two solutions to the problem of at-risk children not participating in universal ECEC services. They may ensure that some of the most vulnerable will connect with services designed to support them and they may assist the sector by sharing how they successfully engage vulnerable families. This paper appraises universal and targeted ECEC services and suggests how both can be combined. It then describes a recent ethnographic study into an Australian ECEC program designed to support vulnerable children and families. It shares some of the study's findings as well as implications that may be helpful for universal ECEC service providers.
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