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BackgroundMost women with multiple sclerosis (MS) have childbearing potential. Although fertility and pregnancy are not affected by MS, the fertility preferences of women with MS can change due to the risk of complications for the mother and/or adverse pregnancy outcomes resulting from the disease or its treatment.ObjectivesTo describe fertility preferences (FPs) and their associated factors, to estimate the Unmet Need for Family Planning (UNFP), use of contraceptives, and history of exposure to disease-modifying therapies (DMTs) during pregnancy in women with MS.MethodsIn a cross-sectional observational study, a random sample of women with MS were surveyed with the FP subset of the Demographic and Health Survey of Colombia. Factors associated with FP were evaluated through bivariate and logistic regression analysis. The proportion of pregnancies exposed to DMTs, UNFP, and use of contraceptives was estimated.ResultsOf the 141 women interviewed, 101 women had childbearing potential, of whom 49 did not want to have children, 38 were sterilized, 33 wanted to have more children, 19 were undecided, and 2 stated they were unable to bear children (menopause or hysterectomy). No MS-related variables were associated with the preference to have more children. Age (OR 0.91; 95% CI 0.84–0.98) and the number of children (OR 0.23; 95% CI 0.09–0.58) decreased the likelihood of desire for children. Of 116 sexually active women, 87.06 % (101) were using contraceptives, and among them, four were using fertility awareness methods and withdrawal. The UNFP was estimated at 6.03% and was not significantly different from the general population. Eighty-two pregnancies were identified, of which 48 occurred after diagnosis, and 25 were exposed to DMTs.ConclusionFertility preference in women with MS is not associated with clinical variables. A large proportion of women choose not to have children and prefer to use permanent contraceptive methods. Although the frequency of contraceptive use was high, some women have the UNFP and use low-efficacy contraceptive methods, which may result in unplanned pregnancies.

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Se describe la carga de cuidado, del apoyo social y la calidad de vida en relación con las características de los cuidadores familiares de personas con esclerosis múltiple. Estudio observacional con muestra por conveniencia con 41 cuidadores familiares de personas con esclerosis múltiple. La carga de cuidado se evaluó con la escala de carga del cuidador de Zarit, El apoyo social con el MOS y la calidad de vida con el cuestionario WHOQOL- BREF. El análisis de datos se realizó con estadística descriptiva y no paramétrica. Se encontró que 70,7% de cuidadores eran mujeres, 80,5% casados, 41,5% con estudios universitarios, 58,5% trabajan, la mayoría con ingresos bajos. Las principales actividades de cuidado eran acompañamiento (95,1%) y soporte emocional (75,6%). 82,6% con ausencia de carga de cuidado, 80,5% recibían apoyo para el cuidado con una mediana (Md) de 79 y desviación cuartil (Dc) de 11 en el MOS y buena calidad de vida. Se concluye que los cuidadores familiares, en su mayoría, están sin sobrecarga del cuidado, cuentan con apoyo social y buena calidad de vida probablemente por las características socioeconómicas favorables, motivación de amor para el cuidado y condiciones del familiar con EM recurrente y baja discapacidad.