Due to the onset peak of COVID‐19, as well as a shortage of human resources, physical environment, protective and medical equipment in hospitals, many patients with mild to moderate symptoms of COVID‐19 are pushed to home care. This condition not only raises public health concerns but also causes a number of psychosocial problems. Therefore, this study intends to examine the psychosocial experiences of patients with COVID‐19 after passing the crisis stage. A qualitative study with a conventional content analysis method was used. Thirty participants were selected using purposeful sampling from Khoy Educational and Medical Centers from 20 March to 20 June 2020. In‐depth semi‐structured interviews were used to collect data. Data were analysed by continuous comparative analysis using MAXQDA 10 software. The concepts extracted from data analysis identified eight subthemes and three main themes. Social rejection theme includes three subthemes: ‘Insularity of the patient’, ‘Concealment’ and ‘patient as the life‐threatening center’. Lack of support theme consists of three subthemes including: ‘financial concerns’, ‘non‐response of the treatment team after discharge’ and ‘concerns about the persistent condition of the disease’. Efforts to gain mental peace theme has two subthemes: ‘recourse to spirituality’ and ‘strengthening hope’. According to the results of the present study, it is necessary to examine the psychological and social needs of patients. Also, by identifying high‐risk groups, supportive psychological networks such as telephone, internet and on‐site medical services to help patients, medical worker and others affected in overcoming psychological problems should be increased. Providing free service packages such as the Internet, free financial aid to damaged jobs and creating the necessary platforms for online shopping and payment services, as well as training on how to plan and practice rehabilitation at home for patients and family caregivers can be helpful.
Supportive care is an important strategy that can help cancer survivors manage changes and problems during their follow‐up care. Identifying patients' care needs is one of the primary steps of the nursing process to plan effective nursing interventions. The aim of this study was to explore adolescent cancer survivors' supportive care needs. Purposeful sampling was adopted to select 49 participants from hospitals to participate in face‐to‐face, semistructured interviews. The qualitative content analysis method was conducted for data analysis. Ten subcategories and four main categories – empathetic care, information about survival period, instrumental support, and cooperation in care – were extracted from the data. These four categories formed a major theme, “supportive care”, as the primary healthcare need. This study highlights that supportive care should be developed collaboratively by family and healthcare providers to meet the needs of adolescent cancer survivors. Survivors' strengths and limitations should be identified, and then supportive care can be provided, such as giving appropriate information, enabling survivors to access supportive networks, and improving survivors’ confidence and autonomy with their self‐management.
Introduction. Studies about epilepsy are more associated with physiological aspects and drug therapy and far too little attention has been paid to psychological and social care, especially in teens. Hence, the present study aimed to assess relationship between self-efficacy and psychosocial care in adolescents with epilepsy. Methods. A cross-sectional association study was conducted on 74 consecutive adolescents aged 10 to 18 years with general attacks of epilepsy referred to Pediatric Neurology Clinics affiliated with the Tabriz University of Medical Sciences in 2013. Data were collected by interview using multisegment tools including demographic characteristics, self-efficacy scaling in children with epilepsy, and reporting tools for children psychosocial care. Results. Our study showed a significant association of self-efficacy with “information received” (P < 0.02) and also with “need for information or support” (P < 0.01) as well as “concerns and fears” (P < 0.01). The comments of doctor or nurse were directly associated with higher self-efficacy and patients' information needs were inversely associated with higher self-efficacy. Conclusion. For adolescents with epilepsy, providing educational materials such as pamphlets and booklets, designing especial websites, and setting especial meetings with and without parents separately are recommended. Scheduling psychosocial supports and collecting more information about this disorder for adolescents will be helpful.
Background Following the spread of Covid-19, many patients received home care services for recovery. The family is one of the informal caregivers who provide daily physical and psychological support to the patient, and they have the most contributions in the care of patients. Accordingly, this study explains the experiences of home caregivers in the families of patients with Covid-19. Methods This is a qualitative study with a hermeneutic phenomenological approach. Purposeful sampling was applied, and semi-structured interviews in the Center of Covid-19 Control in Khoy, Iran, were used to collect the information. Twenty-three family caregivers, who had already provided care for patients with Covid-19 at home, participated in the study. The themes emerged from interviews. The interviews were recorded and transcripted then analyzed using Dickelman’s interpretive phenomenological approach. Results 13 primary concepts, six sub-themes, and three main themes were extracted from the data analysis, including "Irrational fear of disease" with sub-themes: fear of getting infected and Indulging in strength of immune system, "Increasing the burden of care in caregivers" with sub-themes: lack of support and caregiver`s family challenges and "Self reinforcement" with sub-themes: highlighting positive features and turning to spirituality. Conclusion Understanding the complexities, experiences, and beliefs of family caregivers about living with a Covid-19 patient provides a comprehensive perception of the psychological and physical consequences of care. Executive decision-makers, health care personnel, and mental health professionals can also take the necessary strategies to support and manage home caregivers and interdisciplinary cooperation.
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