These guidelines for the management of congenital ichthyoses have been developed by a multidisciplinary group of European experts following a systematic review of the current literature, an expert conference held in Toulouse in 2016 and a consensus on the discussions. They summarize evidence and expert-based recommendations and are intended to help clinicians with the management of these rare and often complex diseases. These guidelines comprise two sections. This is part one, covering topical therapies, systemic therapies, psychosocial management, communicating the diagnosis and genetic counselling.
These guidelines for the management of congenital ichthyoses have been developed by a multidisciplinary group of European experts following a systematic review of the current literature, an expert conference held in Toulouse in 2016, and a consensus on the discussions. These guidelines summarize evidence and expert-based recommendations and intend to help clinicians with the management of these rare and often complex diseases. These guidelines comprise two sections. This is part two, covering the management of complications and the particularities of some forms of congenital ichthyosis.
The documentation of the flavor and texture qualities of products is critical in product development and product improvement. Descriptive analysis uses highly trained panels to generate these unique analytical sensory profiles. The recruitment of qualified and motivated panelists is essential to a descriptive analysis program and the product development efforts the panel documents. Previous recruiting methods have proven ineffective in the current job market; this paper demonstrates a novel approach that the Pillsbury Co. took in the recruitment of panelists. Advertising was specifically targeted to attract viable candidates. Candidates were also presented with increased opportunities to gain information about the panelist positions. These methods were successful in recruiting high performance panelists.
This paper describes the processing of medical data of in-patients in a gastro-enterological department. The project has three aims:—Setting up medical information according to a logical procedure akin to medical thinking and projecting the data in a form similar to classical medical observation;—Establishing a data bank of which the data may be directly evaluated with statistical methods; —Setting up a patient card index which is kept up to date automatically in the case of re-admission to the hospital or consultation.The program uses a table of 2,300 items. The items correspond to subjective symptoms as well as objective findings. A close relation was established between each item and the time of its observation, in order to be able to exactly describe the entire course of the illness. As a result we obtain—a computer listing with all medical information in triplicate (one copy for the physician, one for the hospital archives and a third one for the information retrieval department);—a computer-edited archive (every week information on newly admitted and released patients as well as on all external consultations is brought up to date in three different categories, according to medical record number, in alphabetical order and according to a key for diagnoses).The procurement of information was integrated into the daily hospital routine, a voluntary participation of the medical personnel being aimed at. Thus, data processing does not demand any additional personnel.Patient data stored by the computer calls for new legislation for the protection of patients, in particular in order to protect the rights of the individuum as against automation and to warrant an accurate control of the data stored.
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