Aim. To analyze the characteristics of primary childhood disability due to diseases of the ear and mastoid process in St. Petersburg from 2001 to 2018. Methods. It was analyzed the indicators of primary childhood disability due to diseases of the ear and mastoid process in St. Petersburg over 18 years (20012018) since the beginning of the pediatric medical and social examination service appeared in the city: number, rate and structure. For the calculation we used the statistical data of the St. Petersburg Health Committee (reporting forms No. 12 and No. 30), the Federal Treasury Institution The Main Bureau of Medical and Social Expertise across St. Petersburg form 7-D (social security), and data of a single automated vertically integrated information and analytical system for conducting. Statistical methods for studying disability were used: continuous observation (indicators of the number and rate of primary disability), nesting (serial) sampling to study the structure of disability (910 children recognized as disabled by the citys Bureau of Medico-social Examination from the moment of their occurrence). Results. The rate of primary disability of children due to pathology of the ear and mastoid process for 18 years ranged from 0.34 to 1.4 per 10 thousand children , the average over the entire period of 0.77 per 10 thousand. In the structure of primary disability due to diseases of the ear and mastoid process in children, was 54.8% boys and 45.2% girls. It was recorded, that increase of the number of children recognized as disabled for the first time due to this pathology was related with an increase in the share of coverage of newborns with hearing screening, as well as an increase in the average annual number of children in St. Petersburg. Also, indicators of primary childhood disability depend on indicators of the primary incidence of ear diseases and mastoid process. Conclusion. Indicators of the number and rate of disability of the children who were first recognized as disabled due to ear and mastoid diseases in St. Petersburg increased from 2001 to 2018, which is associated with an increase in birth rates, primary morbidity and primary detection of ear and mastoid diseases in children.
Background. Hearing impairment in children has not only medical, but also social significance, since it significantly affects the communication processes and the development of the childs speech and can lead to social maladjustment to one degree or another. Aim: to study the functions and life of disabled children with hearing impairment from the perspective of the International Classification of Functioning, Disabilities and Health (ICF). Rehabilitation expert diagnostics and questioning of 181 children were carried out according to a specially developed methodology taking into account ICF domains and the WHO DASH questionnaire of the World Health Organization. As a result of the study, impairments of various functions of varying severity were revealed in children with disabilities, which determines the characteristics of medical and social rehabilitation of this category of patients. Conclusion. A detailed description of the factors affecting the disability of children with hearing impairments makes it possible to develop algorithms for rehabilitation and expert diagnostics and targeted medical and social rehabilitation for the development of a comprehensive rehabilitation system in the constituent entities of the Russian Federation, as well as standard rehabilitation programs in institutions that are direct executors of individual rehabilitation programs and habilitation of disabled children with hearing impairments.
Goal. A study of the rehabilitation infrastructure of the social and pedagogical spectrum of the Northwestern Federal District for children with autism spectrum disorder (ASD). Materials and methods. The indicators of the level of disability of children with ASD were calculated and analyzed on the basis of data from the state statistical reporting in the Northwestern Federal District for 2018. Based on the information provided by the portal of the Federal Resource Center for the Organization of Comprehensive Support for Children with Autism Spectrum Disorders (FRC) a review of social and psychological and pedagogical services was carried out, indicators of the provision of children with organizations providing assistance to people with ASD, the structure of organizations by departments were studied (education, social protection of the population, non-profit organizations, excluding health care and culture and sports). Results. In 2018, 5770 children were registered in the Northwestern Federal District, for the first time and repeatedly recognized as disabled due to mental disorders and behavioral disorders, of which 684 are disabled children with autism spectrum disorders, which amounted to 3.3% of the total disability of the child population on appeal to the bureau of medical and social expertise in the Northwestern Federal District. Rehabilitation measures/services for children with these disorders are provided in 205 organizations: mainly educational institutions - 94%, as well as social protection - 4%, non-profit organizations - 2%. Five regional resource centers have been organized: four of which are in the field of education - in the Leningrad, Murmansk, Pskov regions and the Komi Republic, one - in the field of social protection - in the Novgorod region. In the field of education, organizations implement adapted educational programs in accordance with Federal state educational standards and provide a range of medical and social rehabilitation services for children with ASD, depending on the type of organization (pre-school educational organizations, general education organizations, educational centers and others). In the field of social protection, organizations (rehabilitation centers and others) mainly provide assistance according to the standard for the provision of social services, including social, socio-medical, socio-psychological, socio-pedagogical, socio-labour, socio-legal services. Non-profit organizations located in St. Petersburg and Arkhangelsk provide social-psychological, social-pedagogical and social-labor services to children with ASD. Conclusion. The results of the study showed that a social and pedagogical rehabilitation infrastructure was created for children with ASD in the Northwestern Federal District in 2018 (healthcare institutions were not studied). Children with ASD and their families can receive services in organizations of various departmental affiliation, which are represented in all constituent entities of the Russian Federation that are part of the Northwestern Federal District, but are concentrated mainly in urban areas, which limits children in obtaining services directly near their places of residence. A system has been created to inform specialists and parents about the rehabilitation infrastructure for children with ASD, which is presented by the FRC portal, at the same time, the need for the organization to submit data to the portal is optional. Services for children with ASD are aimed at solving issues of psychological, pedagogical, social and vocational rehabilitation, including career guidance work with adolescents and, as a result, at the social adaptation of a child with ASD and his integration into society.
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