Aim To explore how parents of children with long‐term conditions experience partnership in paediatric and neonatal nursing care and to identify existing partnership barriers and facilitators. Background Parent–nurse partnership is fundamental to paediatric and neonatal nursing. Partnership is characterised by five attributes: parental participation, negotiation, mutual trust and respect, shared roles and decision‐making, and communication. Little is known about the parental experiences of partnership nursing specific to children living with a long‐term condition. Design A qualitative meta‐aggregation review following Joanna Briggs Institute meta‐aggregation approach. Methods A comprehensive search was conducted in six electronic databases. Studies were assessed according to the inclusion and exclusion criteria. Qualitative findings with illustrative quotes from included studies were extracted and grouped into categories which informed the synthesised findings. This review has been reported according to the PRISMA guidelines. Findings A total of 4,404 studies were screened, 162 full‐text studies were assessed against the inclusion and exclusion criteria, and a total of six studies were included. The meta‐aggregation developed three overarching synthesised findings which were as follows: (a) empowering parents to become involved, (b) effective communication to recognise mutual expertise and (c) collaborative nurse–family relationships. Conclusion Parents valued collaboration where both parents and nurses are recognised equally for their skills and expertise. A power struggle existed between parents and nurses when expertise was not recognised. Parents appreciated nurses who empowered them to develop new skills and knowledge in the care of their own child. Relevance to clinical practice Nurses need to recognise the skills and knowledge that parents have surrounding the care requirements of their own children. Collaboration and negotiation are key to successful partnership between nurses and parents. Nurses need to frequently reflect on how they are successfully partnering with both parents and children and ensure all parties in the nurse/parent/child triad feel supported and empowered.

Aims and Objective:To describe the experiences of nursing care and partnership nursing as expressed by children living with long-term conditions.Background: Children with long-term conditions have higher rates of hospitalisations and adverse events in hospital, yet little is known about their experiences of nursing care. How children perceive partnership in care with their families and nurses is of interest in the achievement of safe and effective care Design: An integrative review following Joanna Briggs Institute protocols for systematic reviews.Method: An integrative review was chosen following Joanna Briggs Institute protocols for systematic reviews. A total of 5150 articles were screened, with 251 fulltext publications reviewed. A total of 21 studies were included, three mixed-method studies and 18 qualitative studies. This review has been reported as per Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines.Results: Four integrated findings were identified: "Children are aware of their surroundings and needs," "Children value positive communication," "Children want to be recognised as an individual in the triadic relationship, and this can be done through nurses using tailored play;" and "Children seek a shared decision-making process." Discussion: Children wanted to be seen as an individual in Children and Young People's nursing as well as a child who craves security, fun and comfort, both from their families and nursing staff. Children described observing partnership between nursing staff and parents but felt uninvolved, with some children craving more knowledge and power to better understand their long-term condition.Relevance to Clinical Practice: Further research is required on how Children and Young People's nursing staff can better support children and empower them to be active members in the shared decision-making process if the child wishes to be involved. K E Y W O R D Schild-nurse relationship, children and young people, family centred care, meta-aggregation, nursing, paediatric nursing, partnership, patient and family centred care F6, F61, F88, Q2 Children are aware of the nurse's role Integrated finding: Children are aware of their surroundings and needs F15, F16, F17, F21 Children are aware of the changes in their life F43, F46, F53, F72 Children are aware of their own health care needs F31, F48, F54, F84 Children are aware of parental anguish F9, F23, F30, F59, F66 Children feel security and safety from their parents and family F49, F60 Children feel loneliness due to their long-term condition F2, F52 Children value positive communication Integrated finding: Children value positive communication F7, F10 Regular communication alleviates fearF26, F65, F86 Children want direct communication from nurses F29, F50, F67, F82, F83, F85 A lack of communication increases levels of worry F44, F45, F47 Children are frustrated with being ignored Q3, Q4, Q7, Q8 Nurses need to tailor their communication to suit a person's individual needs F1, F5, F33, F70, F90 Children value...

BackgroundThis redlined PDF shows all copy edited changes made to your manuscript. They are for your reference only. Please make all edits in the HTML version of the proofs. 2Adults with intellectual disability are at higher risk of being administered psychotropic medications. The SPECTROM training programme educates disability support workers on psychotropic medications and alternatives to these medications. MethodInterviews were conducted with 10 participants who took part in the pilot SPECTROM training programme to elicit their views on the programme and its appropriateness in an Australian context. ResultsThe key theme was: 'Need for a psychotropic medication practice framework.'. Four sub-themes were: Broad satisfaction with the SPECTROM training programme; Disability support workers acknowledging the limitations of their scope of practice; Empowering training through prescriptive and reflective methods and;Need for future mentoring from Multi-Disciplinary Team members in the application of new knowledge. ConclusionsParticipants felt that whilst they could improve their knowledge and attitudes surrounding psychotropic medication administration for behaviours of concern through SPECTROM training, a national practice framework is needed to execute its goals at scale.

Background There is evidence that psychotropic medications are overprescribed and overused to manage behaviours of concern for people with intellectual disabilities. Disability support workers and support staff lack education and training on the administration and safety of psychotropic medication use. This study aimed to test the applicability and preliminary efficacy of SPECTROM, an education programme developed in the UK, in an Australian context. MethodsThe training comprises two parts: Module 1 encompasses psychotropic medications, their use and side effects. Module 2 focuses on non-pharmacological interventions for supporting people with behaviours of concern. Thirty-three participants attended the training course and completed pre-training and post-training surveys on the Psychotropic Knowledge Questionnaire and Management of Aggression and Violence Attitude Scale-Revised at four time points: pre-training, 2 weeks, 3 months and 5 months post-training. Results Psychotropic Knowledge Questionnaire scores showed statistically significant post-training improvement at all post-training time points (P < 0.05). Management of Aggression and Violence Attitude Scale-Revised scores were high at pre-training and did not change significantly at any of the post-training survey time points. A 2-week posttraining feedback questionnaire reported 80% agreement that the training programme was appropriate, useful and valid. Only 36% of participants completed questionnaires at all time points. Conclusions SPECTROM training increased staff knowledge of psychotropic medications, yet loss of participants was high. Further refinement of the applicability of the training for the Australian context and evaluation of the feasibility of implementation, clinical and cost-effectiveness of the programme are required.

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