Falling birth rates and rising life expectancy are leading to global aging. The proportional increase in older people can be observed in almost all countries and regions worldwide. As a result, more people spend their later years in nursing homes. In homes where person-centered care is implemented, residents report greater satisfaction and quality of life. This approach is based on the wishes and needs of the residents. Therefore, the purpose of this scoping review is to explore the wishes and needs of nursing home residents. A scoping review of the literature was conducted in which 12 databases were systematically searched for relevant articles according to PRISMA-ScR guidelines. Both quantitative and qualitative study designs were considered. A total of 51 articles met the inclusion criteria. Included articles were subjected to thematic analysis and synthesis to categorize findings into themes. The analysis identified 12 themes to which the wishes and needs were assigned: (1) Activities, leisure, and daily routine; (2) Autonomy, independence, choice, and control; (3) Death, dying, and end-of-life; (4) Economics; (5) Environment, structural conditions, meals, and food; (6) Health condition; (7) Medication, care, treatment, and hygiene; (8) Peer relationship, company, and social contact; (9) Privacy; (10) Psychological and emotional aspects, security, and safety; (11) Religion, spirituality; and (12) Sexuality. Nursing home residents are not a homogeneous group. Accordingly, a wide range of needs and wishes are reported in the literature, assigned to various topics. This underscores the need for tailored and person-centered approaches to ensure long-term well-being and quality of life in the nursing home care setting.
Symptom Checker Applications (SCA) are mobile applications often designed for the end-user to assist with symptom assessment and self-triage. SCA are meant to provide the user with easily accessible information about their own health conditions. However, SCA raise questions regarding ethical, legal, and social aspects (ELSA), for example, regarding fair access to this new technology. The aim of this scoping review is to identify the ELSA of SCA in the scientific literature. A scoping review was conducted to identify the ELSA of SCA. Ten databases (e.g., Web of Science and PubMed) were used. Studies on SCA that address ELSA, written in English or German, were included in the review. The ELSA of SCA were extracted and synthesized using qualitative content analysis. A total of 25,061 references were identified, of which 39 were included in the analysis. The identified aspects were allotted to three main categories: (1) Technology; (2) Individual Level; and (3) Healthcare system. The results show that there are controversial debates in the literature on the ethical and social challenges of SCA usage. Furthermore, the debates are characterised by a lack of a specific legal perspective and empirical data. The review provides an overview on the spectrum of ELSA regarding SCA. It offers guidance to stakeholders in the healthcare system, for example, patients, healthcare professionals, and insurance providers and could be used in future empirical research to investigate the perspectives of those affected, such as users.
Aims and Objectives To explore wishes and needs, such as existing and preferred communication processes, of residents and relatives regarding medical and nursing planning at the end of life. Background Nursing home residents are a relevant target group for advance care planning (ACP) due to their high age and multimorbidity. Their relatives seem to be important partners in terms of communication and their documentation of wishes and needs. Design A qualitative descriptive design was used. Methods Thirty‐two guideline‐based interviews with nursing home residents (n = 24) and relatives (n = 8) were conducted in nursing homes in Germany (n = 7). All interviews were analysed by content‐structured content analysis. The COREQ checklist was used to document reporting of the study. Results Residents particularly express wishes and needs regarding their health, like the desire to maintain or improve one's current state of health and to be active and mobile and also regarding their social situation, for example the well‐being of relatives and beloved ones. A limited group of people was identified with whom residents spoke about issues such as preparedness and self‐determination. These were mainly their relatives. Relatives themselves have a need for more communication. Various communication barriers could be identified. Conclusion Residents express diverse and partly explicit wishes and needs. Although many of the respondents had already drafted advanced directives, the demand for offers of communication to plan ahead for the end of life remains clear. The results indicate the unconditional participation of relatives and people close to the residents, if they are available. Relevance to clinical practice Derivations for a target group‐related ACP concept in the study region are identified. Besides the involvement of relatives, nurses could also be involved in the communication and decision‐making process of residents in nursing homes under certain conditions.
Zusammenfassung Einleitung Die Möglichkeit, mittels Patientenverfügung Einfluss auf die spätere Behandlung im Falle der Einwilligungsunfähigkeit zu nehmen, gilt heutzutage als wichtiges Element zur Wahrung der Patientenautonomie am Lebensende. Behandlungsmaßnahmen bereits im Vorfeld einer Behandlung abzulehnen oder in diese einzuwilligen, ist für Bewohnende stationärer Pflegeeinrichtungen nicht nur vor dem Hintergrund der COVID-19-Pandemie von besonderer Bedeutung. Methoden Es wurde eine Vollerhebung aller Vorsorgedokumente von Bewohnenden in 13 stationären Pflegeeinrichtungen unterschiedlicher Größe und Trägerschaft in der Stadt und dem Landkreis Würzburg durchgeführt. Die Analyse der Dokumente erfolgte nach deduktiv-induktivem Vorgehen mittels kategorialer Zusammenfassungen und deskriptiver Häufigkeitsauszählungen. Ergebnisse In 265 erfassten Patientenverfügungen konnten 2072 Behandlungssituationen und 1673 medizinische Behandlungsmaßnahmen identifiziert werden. Bewohnende stimmen symptomlindernden und pflegerischen Maßnahmen größtenteils zu und lehnen lebensverlängernde bzw. -erhaltende Behandlungsmaßnahmen häufig ab, wobei letztgenannte zumeist auf bestimmte, festgelegte Behandlungssituationen beschränkt werden. Die Bezugnahme auf bestimmte Behandlungssituationen konnte beim Reanimationsversuch, sowohl in Form der Ablehnung wie der Einwilligung, in 88,6 % der Patientenverfügungen festgestellt werden. 62 % der Patientenverfügungen konnten einer Formularvorlage zugeordnet werden. Diskussion Die Untersuchung liefert Erkenntnisse über den Inhalt von Patientenverfügungen bei Bewohnenden stationärer Pflegeeinrichtungen. Sie gibt damit Hinweise auf medizinische Behandlungswünsche dieser Personengruppe im Falle der Einwilligungsunfähigkeit und zeigt auf, dass Behandlungsmaßnahmen (auch Reanimation) häufig in Bezug zu spezifischen Behandlungssituationen gesetzt werden.
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