This paper presents findings from two linked studies of white (n = 77) and Chinese (n = 92) older adults living in the UK, which sought their views about end-of-life care. We focus particularly on experiences and expectations in relation to the provision of end-of-life care at home and in hospices. White elders perceived hospices in idealised terms which resonate with a 'revivalist' discourse of the 'good death'. In marked comparison, for those Chinese elders who had heard of them, hospices were regarded as repositories of 'inauspicious' care in which opportunities for achieving an appropriate or good death were limited. They instead expressed preference for the medicalised environment of the hospital. Among both groups these different preferences for instututional death seemed to be related to shared concerns about the demands on the family that may flow from having to manage pain, suffering and the dying body within the domestic space. These concerns, which appeared to be based on largely practical considerations among the white elders, were expressed by Chinese elders as beliefs about 'contamination' of the domestic home (and, by implication, of the family) by the dying and dead body.
There is growing comment in both academic and popular writing about the shape and content of funerals today, with general agreement that we are seeing marked changes with a growing trend towards secularisation and personalisation. Despite this, there is as yet relatively little systematic research on the topic. This article reports on a study funded by the Arts and Humanities Research Council UK into spirituality in contemporary funerals. This qualitative study centred around case studies of 46 funerals in the north of England and gathered data from observations of funeral arrangement meetings as well as the funeral and semi-structured interviews with bereaved families and funeral professionals. The way both sets of participants engaged with the funeral and its constituent elements in an active process of meaning-seeking, meaning-creating and meaningtaking was closely aligned with contemporary understandings of humanistic spirituality. There was, however, little evidence of adherence to formal religious belief systems or wider philosophical frameworks amongst the bereaved families but considerable evidence of drawing on religious tradition and specific beliefs to locate personal meaning-making. The authors conclude that the funeral remains a significant ceremonial event which is psycho-social-spiritual in character and purpose.
for Hospices and Specialist Palliative Care Services, 1995. tion, our analysis has indicated that professional-2. National Council for Hospices and Specialist Palliative patient communication with Chinese patients Care Services. Wider Horizons. London: National Council d for Hospices and Specialist Palliative Care Services. 2001. needs to take account of differing understan ings 3. Department of Health. Reducing Health Inequalities: an and values placed on individual autonomy versus action report. Our Healthier Nation. London: HMSO. 1999. collective family decision making.
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.