Introduction Effective engagement of underrepresented communities in health research and policy remains a challenge due to barriers that hinder participation. Our study had two objectives: (1) identify themes of person‐centred care (PCC) from perspectives of diverse patients/caregivers that would inform the development of person‐centred quality indicators (PC‐QIs) for evaluating the quality of PCC and initiatives to improve PCC and (2) explore innovative participatory approaches to engage ethnocultural communities in qualitative research. Methods Drawing on participatory action research methods, we partnered with a community‐based organization to train six ‘Community Brokers’ from the Chinese, Filipino, South Asian, Latino‐Hispanic, East African and Syrian communities, who were engaged throughout the study. We also partnered with the provincial health organization to engage their Patient and Family Advisory, who represented further aspects of diversity. We conducted focus group discussions with patients/caregivers to obtain their perspectives on their values, preferences and needs regarding PCC. We identified themes through our study and engaged provincial stakeholders to prioritize these themes for informing the development of PC‐QIs and codesign initiatives for improving PCC. Results Eight focus groups were conducted with 66 diverse participants. Ethnocultural communities highlighted themes related to access and cost of care, language barriers and culture, while the Patient and Family Advisory emphasized patient and caregiver engagement. Together with provincial stakeholders, initiatives were identified to improve PCC, such as codesigning innovative models of training and evaluation of healthcare providers. Conclusion Incorporating patient and community voices requires addressing issues related to equity and understanding barriers to effective and meaningful engagement. Patient or Public Contribution Patient and public engagement was central to our research study. This included partnership with a community‐based organization, with a broad network of ethnocultural communities, as well as the provincial health service delivery organization, who both facilitated the ongoing engagement of diverse patients/caregiver communities throughout our study including designing the study, recruiting participants, collecting and organizing data, interpreting findings and mobilizing knowledge. Drawing from participatory action research methods, patients and the public were involved in the codesign of the PC‐QIs and initiatives to improve PCC in the province based on the findings from our study.
Abstract:There is a lack of interpretive research in the domestic violence literature and, in particular, within an ethnocultural context. Interviews were held with four Filipina women in Calgary, Alberta who had previously been in violent relationships, in combination with a referral group of key informants with leadership and knowledge of community issues related to domestic violence. By adopting a phenomenological approach to the research, it was hoped that new understandings of what is identified in clinical paradigms as the "risk" and "protective" factors associated with domestic violence would be unearthed. This research study is at once exploratory and informative and is intended to contribute to the development of a province-wide plan to address and prevent domestic violence through the Brenda Strafford Chair in the Prevention of Domestic Violence at the Faculty of Social Work, University of Calgary.Keywords: domestic violence prevention, ethnocultural communities, Filipino, phenomenological approach and domestic violence Acknowledgements: We gratefully acknowledge our research participants, women and men from the Filipino Community in Calgary, who bravely stepped forward to share their stories and insights with us. Without you, this research would not be possible. This project was made possible through funding from the Centre for Criminology and Justice Research (CCJR), which contributes independently produced, evidence-based research in the study of criminal and social justice issues and the promotion of safe communities.
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