The present study examined the views of four people with intellectual disabilities (IDs) on the relationships in their lives which they described as close friendships. A participatory approach was adopted in this study, whereby the participants were seen as experts on their own close friendship experiences and the researchers as marshallers of this expertise. To this end, two in-depth interviews were conducted with each participant. They shared their individual expertise on the close friendships in their lives. The participants delineated two distinctive types of close friendships: the 'good mate' and the girlfriend/boyfriend. The factors mediating each of these friendship types are discussed. Avenues for further research and consideration are given. These include the significance of friendships with people with IDs, intimate relationships, the impact of environmental factors on friendship enactment and friendships with older people who have IDs. Finally, the present paper argues for the value of adopting participatory approaches to research with people who have IDs.
Culture recurs as an important but under-investigated variable associated with resident outcomes in supported accommodation for people with intellectual disability. This study aimed to conceptualize the potential dimensions of culture in all group homes and describe the culture in underperforming group homes. A secondary analysis, using an inductive interpretative approach, was undertaken of a large qualitative data set from a study that had used ethnographic and action research methods to explore the quality of life outcomes for residents in 5 small group homes. Five categories were developed: misalignment of power-holder values with organizations espoused values, otherness, doing for not with, staff centered, and resistance. Differences from institutional culture are discussed, and the potential of the findings as a starting point to consider culture in high performing group homes and develop a quantitative measure of culture.
To become an effective inclusive research team, all team members, regardless of ability, need to bring their own experiences and also learn necessary research skills. This paper highlights the need for team building, joint research training among all members of the research team and strategies supporting the peer-mentoring within the team. We are a team of four researchers with intellectual disabilities and four academic researchers without an intellectual disability. Our aim has been to learn about research together. We want to do this so that we can carry out a research project together about how older women with intellectual disabilities live. We have decided to call our team 'Welcome to our Class'. We have been working together for 9 months. In this time we have had 15 research training meetings. We have learned What research is How to work out a research question, that is what we want to find out about How to get information on what we want to find out. Here we thought of interview questions we could ask older women with intellectual disabilities. We are now meeting once a month, and have just begun our research on finding out how older women with intellectual disabilities live. We are now starting to use what we have learned.
This paper, reporting on part of a wider study, explores the views held by 68 families, who have a child with a disability, of their perceptions of lifestyle control or empowerment. In particular, the paper seeks to examine whether these families perceive their interactions with service providers to be consistent with family‐empowerment principles. Individual open‐ended interviews were conducted with these family members, yielding information on their perceptions of their control over their family lives, and on their views as to how their interactions with service providers might be conducted in such a way as to recognize and enhance such control. The implications for professionals working with families in a manner that recognizes family members as truly equal partners and that promotes and enhances genuine family empowerment are discussed.
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