BackgroundMeasuring family caregivers’ quality of life plays a significant role in improving the quality, efficiency, development, and provision of efficient services for patients with COVID-19. As a result, evaluating the quality of life requires the use of valid and reliable measures that are culturally appropriate. This study was conducted to determine the psychometric properties of the Persian version of the Quality of Life in Life-Threatening Illness–Family Carer Version (QOLLTI – F) in patients with COVID-19.MethodsThis methodological study was carried out in 2021 at Baqiyatallah Hospital in Tehran. After gaining approval from the tool creator, the translation was carried out utilizing the forward-backward approach. Cognitive interviews with 10 family caregivers of COVID-19 patients were used to demonstrate face validity. Moreover, construct validity was identified by performing exploratory factor analysis (EFA) (n = 251), confirmatory factor analysis (CFA) (n = 200), and convergent validation using Zarit Burden Interview (ZBI) questionnaire. For scale reliability, internal consistency and stability were performed using Cronbach’s Alpha Coefficient and test-retest, respectively.Results451 family caregivers of patients with COVID-19 were enrolled in this study. Three factors with a cumulative variance of 51.85% were extracted during EFA: (1) Caregiver’s physical-emotional status, (2) Satisfaction with the situation, and (3) Caregiver’s concerns. CFA showed that the model enjoyed a moderate to a good fit of information (RMSEA: 0.087; NFI: 0.98; CFI: 0.91; IFI: 0.91; GFI 0.89; standardized RMR: 0.070). A significant correlation was found between the Persian version of the ZBI and participants’ total scores of QOLLTI – F v3 (r = –0.196, P = 0.000). Cronbach’s Alpha Coefficient = 0.719 and ICC stability reliability = 0.71 of the questionnaire were confirmed.ConclusionThe Persian version of the QOLLTI – F v3 is a valid and reliable scale that can measure family caregivers’ quality of life during a Life-Threatening illness in patients with COVID-19. This instrument may be utilized in clinical trials and research to enhance the quality of life for family carers in Iranian society.
Background diagnosis of perinatal anomalies is a stressful experience that can negatively affect mothers, families, health-care systems, and societies. Perinatal palliative care (PPC) is a new development in maternity services which focuses on emotional, spiritual, social, and symptom management and provides care for women and families with fetal anomaly diagnosis. Therefore, this study aimed to develop a service package for women with fetal anomaly diagnosis in socio-cultural context of Iran. Methods This research is an exploratory mixed methods study with the qualitative-quantitative sequencing design that consists of four sequential phases. In the first phase, following a qualitative approach, the researcher will explore the needs and experiences of women with fetal anomaly diagnosis, their families, health care providers and policy-makers. At the second phase, based on the review of the literature, Program, guideline, service package and protocol for care of women and their families after perinatal anomaly diagnosis will be identified in other countries. In the third phase, recommendations from qualitative phase and literature review will be combined, the initial protocol of the palliative care service package for perinatal anomaly diagnosis will be identified and prioritized. In the fourth phase, the opinion of experts about this service package will be collected by using RAND/UCLA Appropriateness Method technique and the applicability of the service package’s recommendations in clinical settings will be determined. Discussion The results of this Mixed Methods study are expected response the needs and experiences of the women with perinatal anomaly diagnosis being met in the socio-cultural context of Iran and a service package for palliative care of these women developed.
Aim: Multiple sclerosis (MS) is one of the most common chronic progressive neurological diseases and is regarded as the non-traumatic cause of neurological disability in youth. The Multiple sclerosis patients need for family caregiver increasingly grows due to the progressive course of the disease, which worsens the symptoms over time. Family caregivers of this group of patients are subject to various challenges and needs in the area of patient care. Therefore, the present study was conducted to explain the social supportive needs of family caregivers of Multiple sclerosis patients. Methods and materials: This qualitative study was conducted in MS Society of Isfahan, Iran, through a conventional content analysis approach in 2019-2020. The participants were selected using a purposeful sampling method. The data was gathered using semi-structured interviews about care-related social supportive needs of Multiple sclerosis patient. After obtaining informed consent, interviews were conducted with 8 patients, 13 family caregivers, and 4 medical staff for approximately 30 to 60 minutes at the place agreed upon by the participants. All interviews were recorded using a recorder. After the interviews were reviewed several times, they were simultaneously transcripted, coded, and analyzed. Finally, Graneheim and Lundman (2004) conventional content analysis approach was used to analyze the data. Results: Findings of this study with regard to social supportive needs of family caregivers of multiple sclerosis patients were classified into 4 main categories, including "providing interaction opportunities to reduce isolation", "empathetic interaction with peers and treatment team members", "financial aids and attracting support from charities", and "family support", and 14 subcategories. conclusion: Findings of this study showed that among fundamental needs of these caregivers to be considered by health providers are providing interaction opportunities to reduce isolation, empathetic interaction with peers and treatment team members, financial aids and attracting support from charities, and support from family. Findings also showed that most of the family caregivers of multiple sclerosis patients do not receive adequate social and systemic support from health care providers and do not have access to support resources. In addition to providing access to proper support and social and systemic resources, the policy makers, health care providers, and nurses can, according to the findings of the present study, provide the required support programs to prepare these caregivers to play a more desirable role in caring for their patients, especially at home environment.
Spirituality is an essential component of health. However, evidence suggests that patients’ spiritual dimension has received less attention, possibly due to the unpreparedness of nurses to provide spiritual care. This study aimed to investigate the context of spiritual care in nursing education and to review the necessary preparations to provide spiritual care, as well as to examine the effective models and methods of spiritual care education in nursing. A comprehensive and in-depth review of the texts was conducted using national and international databases including SID, Magiran, Barakat, PubMed, ProQuest, Scopus, Embase, Web of Science and Google Scholar, spanning the years 2016–2021 and using the keywords “Spiritual care”; “Spiritual Curriculum”; “Spirituality”; “Religion”; “Nursing curriculum”; “Nursing students”; “Nursing educator”; “Nursing education”; “Education”; “Nursing”; and “Curriculum.” Out of 743 obtained articles, 39 were enrolled. The results showed that the basis of spiritual care in nursing education is inappropriate and the necessary preparations for providing proper spiritual care are not well provided. Although various models and variants have been presented to educate spiritual care, they are not organised throughout the students’ curriculum. Using a curriculum includes spirituality, spiritual awareness, and spiritual care, as well as organising it throughout the student curriculum, which can be the first step in providing decent spiritual care. Therefore, it is worthwhile to take effective steps in promoting spiritual care by solving the existing challenges and reducing the gap between theoretical and clinical education.
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