ObjectiveThis study discusses the challenges and successes of engaging young people in a project aimed at developing an online counselling intervention for young people affected by cancer.ContextFor younger people with a diagnosis of cancer or who are caring for someone with cancer, the psychosocial consequences can create significant challenges for their social and educational development. Whilst young people have been shown to be reluctant to make use of traditional face‐to‐face counselling, research is beginning to suggest that effective therapeutic relationships can be formed with young people online.DesignThe first phase of the study involved working with a ‘Young Persons’ Panel’ of healthy school pupils and university students to develop and pilot an online counselling intervention and study materials in preparation for a pilot evaluation of the intervention.InterventionAn avatar‐based virtual reality counselling world was created where young people can create their own avatar and receive counselling over the Internet from a qualified counsellor via an avatar in a virtual reality world.FindingsThe process of engaging young people in the C:EVOLVE project enabled a unique intervention to be developed and demonstrated positive developmental opportunities. However, despite the rigorous approach to the development of the intervention, initial attempts within the pilot evaluation phase of the study showed difficulties recruiting to the study, and this phase of the study has currently ceased whilst further exploratory work takes place.ConclusionThis study has demonstrated the complexities of intervention development and evaluation research targeted at young people and the challenges created when attempting to bring clinical practice and research evaluation together.
Objective: The aim of this project was to document a partnership working process from a cross-sectoral and cross-cultural participatory health research study focused on promoting physical activity among women from Black, Asian and minority ethnic (BAME) backgrounds. Design: A participatory health research paradigm was used to support this pilot feasibility study into partnership working for health promotion. Action research and community development principles underpinned the design, delivery and interpretation of findings from a community-based survey, data from four focus groups and bespoke interventions. Setting: Community groups from education, leisure, health and religious community sectors, and charity sectors, in the City of Liverpool, met in different venues representing those sectors. Method: Reflection on the process of community engagement in a research study guided by socio-ecological model, community development and action research principles. Results: Seven emerging collaborative processes based on effective partnership working, capacity-building practice and sustaining health and wellbeing evolved from a partnership between a Community Researchers Advisory Group and a Partners Advisory Group. BAME ‘community connectors’ were key to obtaining feedback from 213 women from 16 ethnic groups, which influenced the development of bespoke interventions and local sport and physical activity long-term policy, as one means of reducing social inequalities for women from BAME backgrounds. Conclusion: This feasibility study demonstrates the effectiveness and limitations of partnership working as a public health tool. The local Sport and Physical Activity Alliance and council department worked together to promote the sustainability of BAME-focused programmes as part of their governance and policy frameworks.
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