SUMMARY
Background
Young people with chronic kidney disease (CKD) have a number of key issues and life changes to manage while also possibly transitioning into adult care. During this time, the nature of their support networks including, social, romantic, family and health care relationships, is changing.
Objective
To explore these young people's experience and perceptions of their past, current and future relationships and support networks.
Design
Qualitative study.
Participants and Methods
Fourteen young adults (8 male, 6 female, aged 18–26 years) with CKD Stages 3–5 participated. Semi‐structured interviews were conducted in order to explore the relationships (friends, family and partners) of young adults with CKD at two UK NHS hospitals. These were transcribed and thematically analysed.
Results
There were four themes identified. ‘Disclosure—To tell or not to tell?’ identified the challenges young adults face when disclosing their condition to friends and prospective partners. ‘Managing support networks’ showed that participants appreciated support from other young adults with CKD but also desired just ‘being normal’ with their friends. While family support is still significant and much appreciated, some young adults also found it harder to develop their independence. ‘Relationship strains and carer needs’ highlights the impact of CKD on all relationships. Participants were also aware of the needs of their ‘carers’. In ‘Happy ever after?’ young adults expressed concerns about meeting a partner and having children.
Conclusions
Young adults with CKD need support in helping them manage new and existing relationships, at a time where relationships are taking on different forms and significance. Moreover, support needs for young adults extend beyond the patient, to those who support them; support services need to reflect this.
Psychological distress is common among those with renal disease. Nottingham University Hospitals NHS Trust's renal and transplant unit has implemented communication skills training to improve the skills of staff, support them in dealing with distressed patients, and improve care offered to patients and carers.
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