Background: A 2005 review by Beart, Hardy and Buchan, asking how people with intellectual disabilities view their social identities, has been widely cited, indicating this important topic needs an updated review. This review covers research on how people with intellectual disabilities view their ascribed label; to what extent they ascribe it to themselves; and whether they recognize it as devalued in society. Method: RapidreviewmethodologyusingPsycINFO,citation-andhand-searching identified relevant studies. Results: The 16 studies identified indicate that the majority are aware of their ascribedlabel,oracknowledgetheyare"different".Othersrejectit,focusingonalternative attributes or roles. Most recognize others view the label negatively and express feelings of shame, anger and powerlessness. Conclusions: The review advances our understanding of social identity formation in people with intellectual disabilities, with implications for future research and practice to support construction of positive social identities and stigma resistance. K E Y W O R D S identity, intellectual disabilities, label, review, stigma 534 |
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IntroductionThe majority of young autistic children display impairing emotional and behavioural difficulties that contribute to family stress. There is some evidence that behavioural parenting interventions are effective for reducing behavioural difficulties in autistic children, with less evidence assessing change in emotional difficulties. Previous trials have tended to use unblinded parent-report measures as primary outcomes and many do not employ an active control, limiting the conclusions that can be drawn.Methods and analysisThe Autism Spectrum Treatment and Resilience study is a pilot randomised controlled trial (RCT) testing the specific effect of a 12-week group parenting intervention (Predictive Parenting) on primary and secondary outcomes, in comparison to an attention control condition consisting of psychoeducation parent groups. Following a feasibility study to test research procedures and the interventions, the pilot RCT participants include 60 parents of autistic children aged 4–8 years who are randomised to Predictive Parenting versus the attention control. Measures are administered at baseline and post intervention to assess group differences in child and parent outcomes, costs and service use and adverse events. The primary outcome is an objective measure of child behaviours that challenge during interactions with their parent and a researcher. The trial aims to provide data on recruitment, retention, completion of measures and acceptability of the intervention and research protocol, in addition to providing a preliminary indication of potential efficacy and establishing an effect size that could be used to power a larger-scale efficacy trial. We will also provide preliminary estimates of the cost-effectiveness of the interventions.Ethics and disseminationEthical approval was granted from NHS Camden and Kings Cross Research Ethics Committee (ref: 16/LO/1769) along with NHS R&D approval from South London and Maudsley, Guy’s and St Thomas', and Croydon Health Services NHS Trusts. The findings will be disseminated through publication in peer-reviewed journals and presentations at conferences.Trial registration numberISRCTN91411078
This is a repository copy of Introducing 'Predictive Parenting' : a feasibility study of a new group parenting intervention targeting emotional and behavioral difficulties in children with autism spectrum disorder..
Whilst it has been suggested that fostering involves being both a parent and a professional, little is known about how foster carers manage these roles. This study aimed to develop an explanatory theory and model of the processes involved in fostering looked after children and the relationship between the roles of parent and professional. Ten foster carers offering intended long-term placements to looked after children and five social care professionals who provide support to foster carers were interviewed. Data were analysed using grounded theory. A preliminary model was developed which suggested that the relationship between the two roles changed over time. Many described initially identifying with the parental role before experiencing challenges that necessitated also taking a professional one. Over time, these separate roles appeared to blend and become interconnected, such that foster carers became ‘professional–parents’. These findings extend our understanding of the complexity of the foster carer role and may link to existing role theories. They may also have important clinical implications for the support and training of foster carers, particularly in the early stages of the fostering journey. Further research, including the use of more diverse samples, is needed to extend these findings.
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