Objective: The present study investigated how adults with congenital craniofacial anomalies (CFAs) and parents experience the long-term and complex treatment offered by a multidisciplinary team (MDT). Design: Exploratory-descriptive qualitative study based on individual semistructured interviews. Setting: Centralized national follow-up and treatment of CFAs by a multidisciplinary craniofacial team from which participants were systematically recruited. Participants: The sample included 48 parents of children with CFAs and 16 adults with CFAs (N = 64). Results: In general, participants reported to be satisfied with the follow-up and treatment they received from the MDT. Still, some aspects of treatment were experienced as demanding such as the large number of health professionals present during the consultation and being the object of their scrutinizing attention. Health professionals’ communication skills were described as central for participants’ involvement in, and satisfaction with, treatment. Participants also expressed a need for more treatment-related information regarding future treatment. Conclusions: Findings could have implications for the organization of care for parents and patients with rare CFAs. The many advantages of MDTs also create unique challenges for patients and parents that need to be addressed. Patients and families should be prepared for the first consultation with the MDT. Health professionals should be aware of their communication style when interacting with patients and be aware of individual differences and needs regarding treatment-related experiences and expectations.
In this paper, we argue for the value of studying gender stereotypes at the subgroup level, combining insights from the stereotype content model, social role theory, and intersectional perspectives. Empirically, we investigate the stereotype content of gender subgroups in Norway, a cultural context for which a systematic description of stereotypes of gender subgroups is lacking. In a pilot study (n = 60), we established salient subgroups within the Norwegian context. Employing the stereotype content model, these groups were rated on warmth and competence in a main study (n = 191). Combining social role and intersectional perspectives, we compared stereotypes of women and men in the same social roles and social categories across subgroups. Comparisons between subgroups of women and men occupying the same social role indicated that at the subgroup level, women are often viewed as warmer than men, whereas the reverse appears to be a rare exception. Competence ratings, however, did not show this consistency. Our results at the subgroup level are consistent with research indicating that current gender stereotypes converge on constructs related to the competence dimension and remain divergent for constructs related to warmth.
This article elucidates adolescent digital disconnection through the lens of narrative identity development to answer the research question: “How do adolescent disconnection experiences play into ongoing identity development processes?” The study draws from qualitative interviews with 17 Norwegian adolescents. The findings indicate that adolescents are ambivalent about their relationships with social networking sites, producing ripple effects on their motivation and disconnection practices. The findings are explained through the cultivation of narrative identity. Thus, this article proposes that adolescent digital disconnection is aligned with identity formation, reflected in narrative themes and corresponding features. By detailing how ongoing identity construction processes underpin the need and ability to disconnect, this article contributes a developmental perspective to the digital disconnection literature.
Young people struggle with permanent online connection that is associated with their generation. This article looks at teenagers’ affective relationship to connectivity and disconnectivity, and how it is socioculturally influenced by the media, family, and peers. It reports on an interview study with 36 teenagers between 15 and 19 years of age from Norway and Portugal. Our findings evidenced how disconnection may arise out of a latent feeling of “disaffect” generated in the experience of the ambience of connected and platform culture as well as the media; or of the unavailability created by how teenagers spend their leisure time, which is influenced by families’ moral economies. Teenagers have to perform affective labor in managing the different, sometimes contradictory, forces that converge in the experience of connectivity. Managing digital disconnection appears as an individual—but socially produced—moral obligation to self-govern, to which teenagers have unequal conditions.
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