Background: Within the context of the Special Interest Research Group (SIRG) on Persons with Profound Intellectual and Multiple Disabilities (PIMD), researchers often discuss the methodological problems and challenges they are confronted with. The aim of the current article was to give an overview of these challenges. Methods: The challenges are centred on six topics. These reflect the main components of a study's design: (a) participant demarcation, (b) participant recruitment, (c) data collection and instruments, (d) data analysis, (e) ethics/including the "voice" of persons with PIMD and (f) theoretical models. Results: Next, to describing the specific challenges, possible solutions and pathways to address them are discussed. These are illustrated by recent studies by the authors and other researchers in the field. Conclusions: The current contribution wants to stimulate further discussion and exchange of ideas, and the development of creative research techniques.
An increasing amount of research attention is being directed toward the educational experiences of students with profound and multiple disabilities. One technique that has allowed a better understanding of alertness and involvement in members of this population is behavior state assessment. In this study, eight matched pairs of school-aged students with profound and multiple disabilities were observed for one full day in either a segregated classroom or an inclusive classroom in Australian schools. Behavior states were systematically observed and recorded, along with several contextual indicators including measures of communicative behaviors, activity, and social grouping. Despite the absence of significant differences in most observed student behavior states between the two settings, the students observed in general classrooms in this investigation were involved in significantly higher levels of communicative interaction than their matched peers in special classrooms. Differences in the frequency of the communicative partners in the two settings were also observed. The implications of these findings are discussed in terms of enrollment practices, staff development issues, and the development of inclusive curriculum and instruction.
The aim of the present study was to explore speech-language pathologists ' (SLPs) perceptions and experiences of factors infl uencing the implementation of communication interventions for students with multiple and severe disabilities. Eight SLPs in New South Wales, Australia, participated in individual interviews and a focus group. Interview transcripts were scrutinized using thematic analysis. Transcripts were coded into categories, which were then grouped to yield themes. Participants identifi ed a broad range of themes, including SLPs ' experience and skills, professional development, and collaboration with teachers and families; as well as home and school contexts, the role of government departments, and broader societal factors. These complex infl uences suggest that systemic supports may be required at multiple levels in order to increase the likelihood of effective implementation of communication interventions for students with multiple and severe disabilities.
These findings underline the complexity of variables involved in delivering educational and communicative interventions for staff working with this population. Implications for further research and application to daily practices in classrooms are discussed.
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