The World Health Organization estimates that 200 million people worldwide have an intellectual disability. Of this number, approximately 250,000 families in the United States, 60,000 in the UK and 45,000 in Canada are affected by Down syndrome (World Health Organisation, 2018). As recently as the 1980s, life expectancy remained below 20 years for people with Down syndrome; this is now over 60 years in developed countries (Ng, Flygare Wallén, & Ahlström, 2017). This has resulted in awareness that dementia disproportionality affects people with Down syndrome at an earlier age, average fifty-five, and is associated with mortality in 70% of adults (Hithersay et al., 2019). People with intellectual disabilities other than Down syndrome are also more likely to develop dementia earlier, on average approximately 10 years prior to that experienced by the population without an intellectual disability (British Psychological Society, 2015). Such demographics demonstrate the global importance of identifying appropriate support for people ageing with intellectual disability.
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